Amyloidosis Speakers Bureau (ASB)
For Patients
Advancing Research
Part of our mission is to help advance research which we believe supports patients, along with the other part of our mission being education through the ASB.
Research is at the core of developing new therapies to improve patient lives. Patients benefit from research through early access to novel therapies, new tests for earlier/easier diagnosis, and new approved treatments. However, research is expensive, takes many years, and is absolutely critical to the deepening of knowledge fueling these advancements. And while significant progress continues to be made, much more needs to be done.
No progress in the fight against this disease happens without funding, and the NIH provides a mere fraction of what is needed. Researchers require money to run their labs, maintain bio banks, purchase equipment, run clinical trials, and more. To operate, they rely on private foundations (like Mackenzie's Mission), grants, and individual donors.
Each year, a portion of our budget goes towards advancing research. We are grateful for the support received from donors and fundraisers (including our Play FORE The Cure Charity Golf Tournament), and proud that collectively these funds are changing the therapeutic landscape and benefiting patients.