Cardiomyopathy is a broad term that is used to describe disease of the heart muscle, making it difficult for the heart to provide the body with an adequate blood supply. It can lead to heart failure and even death. In this article, we’ll discuss the types of cardiomyopathy and its connection to amyloidosis.
Welcome to Mackenzie's Mission
Making a difference in the fight against amyloidosis
My Story by Mackenzie Boedicker
My New Life Fighting Amyloidosis
In April of 2017, I was diagnosed with Amyloidosis, a rare and deadly bone marrow disorder that causes a buildup of abnormal protein in vital organs, eventually leading to organ failure. I successfully underwent treatment at the Mayo Clinic, and thanks in large part to my early diagnosis, I achieved complete remission.
This past year I devoted my time largely to Mackenzie’s Mission and the work of the Amyloidosis Speakers Bureau. Outside of the foundation, I work as a clinical technician at a local hospital, gaining valuable hands-on patient experience. Happily, I have been accepted into the Physician Assistant program at Northeastern University, and I can’t wait to return to my alma mater and Boston in the fall of 2022. In spite of COVID, I was able to spend a week in Iceland, taking in their breathtaking landscape and beautiful country. As for my disease, I am on a regimen that keeps my disease under control, and I continue to feel great.
Importantly, as a result of my experience and my desire to give back, I founded Mackenzie’s Mission to make a difference in the fight against Amyloidosis. I invite you to sign up and follow my journey.
Americans of Portuguese descent are disproportionately impacted by hereditary ATTR (hATTR) amyloidosis, a rare, rapidly progressive, and debilitating disease affecting multiple organs and tissues. Watch this informative news segment featuring Dr. Anthony Geraci, a neurologist who specializes in managing hATTR amyloidosis. He is joined by Julio, who was diagnosed with the disease a few years ago, and his daughter and caregiver Renee. Together they explore the experience of living with this rare, genetic disease.