Is the age at diagnosis of AL Amyloidosis changing? We set out to find the answer.
Welcome to Mackenzie's Mission
Making a difference in the fight against amyloidosis
60 VOICES in 60 DAYS
During May and June we’ll be posting 60 of the most memorable quotes from our VOICES of Amyloidosis campaign. Here is #21. To see all released so far, visit our facebook page https://www.facebook.com/mackenziesmission713/
“The estimated one year survival rate for stage IV light chain amyloidosis is only 30%, which is much lower compared to stage IV colon cancer 50% and stage IV breast cancer 52%.“ – Jose Nativi-Nicolau, MD
My Story by Mackenzie Boedicker
My New Life Fighting Amyloidosis
In April of 2017, I was diagnosed with Amyloidosis, a rare and deadly bone marrow disorder that causes a buildup of abnormal protein in vital organs, eventually leading to organ failure. I successfully underwent treatment at the Mayo Clinic, and thanks in large part to my early diagnosis, I am in complete remission.
In December 2018, I moved back to the Washington D.C. area after finishing a nearly two-year term as a research associate at Harvard Medical School. I learned an incredible amount about scientific research, its value, and the translation of the work back into the clinic. It has continued to energize me as I apply to medical school in the coming year. While in Northern Virginia, I shadow an orthopedic trauma surgeon at Inova Fairfax Hospital, where I’ve been shadowing on and off for over six years. In my spare time, I continue coaching youth hockey, something I have come to truly love, and volunteer as a head coach for a U19 girls ice hockey team. I continue to feel great and remain disease free.
Importantly, as a result of my experience and my desire to give back, I founded Mackenzie’s Mission to make a difference in the fight against Amyloidosis. I invite you to sign up below and follow my journey.