In this special video, hear world-renowned expert Dr. Mathew S. Maurer and his patient John Basdavanos presenting to a group of medical students. Dr. Maurer provides a brief overview of Wild-Type Amyloidosis (ATTRwt), while John provides the patient perspective. Together, these insights offer a compelling story about battling a life threatening disease.
Welcome to Mackenzie's Mission
Making a difference in the fight against amyloidosis
My Story by Mackenzie Boedicker
My New Life Fighting Amyloidosis
In April of 2017, I was diagnosed with Amyloidosis, a rare and deadly bone marrow disorder that causes a buildup of abnormal protein in vital organs, eventually leading to organ failure. I successfully underwent treatment at the Mayo Clinic, and thanks in large part to my early diagnosis, I achieved complete remission.
In December 2018, I moved back to the Washington D.C. area after finishing a nearly two-year term as a research associate at Harvard Medical School. I learned an incredible amount about scientific research, its value, and the translation of the work back into the clinic. While in Northern Virginia, I am pursuing a career in the healthcare field. I am very invested in Mackenzie’s Mission and our exciting Amyloidosis Speakers Bureau. I have spoken to students at Mayo Clinic, Tufts University, and University of Illinois, Chicago, and found each to be extraordinarily rewarding. I shadow an orthopedic trauma surgeon at Inova Fairfax Hospital, where I’ve been shadowing on and off for over seven years. In my spare time, I continue coaching youth hockey, something I have come to truly love, and volunteer as a head coach for a U19 girls ice hockey travel team. I am on an immunotherapy regimen to keep my disease at bay and continue to feel great.
Importantly, as a result of my experience and my desire to give back, I founded Mackenzie’s Mission to make a difference in the fight against Amyloidosis. I invite you to sign up and follow my journey.
It’s been a wonderful year, closing our our second full school year since our launch. Since we began two years ago, we have made over 110 presentations to over 5,600 first/second year medical students. Feedback confirms that our patient speakers do a great job educating future doctors on the patient perspective of navigating a rare disease! We invited you to read more about what we’ve accomplished so far in 2021.
Are you wondering what diet to follow after a diagnosis of AL Amyloidosis? With so many unknowns and what-ifs, it is a scary and overwhelming time. Guest writer Lori Grover, herself an Amyloidosis survivor, provides helpful insights into healthy eating. So much is out of your hands as you wait for test results and treatment […]