The Amyloidosis Speakers Bureau (ASB) is an initiative sponsored by Mackenzie’s Mission to close the medical education gap about this disease. The core of this initiative is a live presentation, where patient educators share their personal journey with amyloidosis — from symptoms, through diagnosis, treatment, and life today battling this rare and incurable disease. Following each presentation the attendees are invited to receive ongoing information about the many facets of the disease. We are pleased that many have accepted.
To expand the body of information sent to those interested, earlier in 2023 we designed a new series of short videos recorded by our ASB advisors, the vast majority of whom are practicing physicians. The topics are varied, discussing symptoms, diagnosis, treatments, clinical trials, multidisciplinary care teams, and racial/ethnic inequities of both AL and ATTR (hereditary and wild-type).
In our Education Hub you can select to view all of our Expert Insights, and be sure to sign up for our newsletter to stay abreast of future releases.
This series offers an extraordinary education opportunity for the medical community, and we believe the patient community will also find this series valuable.
Here’s a LINK to the website page.