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"What lies behind you and what lies in front of you, pales in comparison to what lies inside of you."
Ralph Waldo Emerson

Blog

AL Amyloidosis: Age at Diagnosis Survey

March 21, 2019

Is the age at diagnosis of AL Amyloidosis changing? We set out to find the answer.

Filed Under: Featured News, What Is Amyloidosis Tagged With: amyloid assassin, amyloidosis, amyloidosis diagnosis, diagnosing amyloidosis

DOCTORS of Amyloidosis

March 10, 2019

Twelve of the most notable experts in the fight against this disease share, in their own unedited words, their views on the state of the disease. This unparalleled collection of messages from leading experts is a priceless read to understand the disease both today, and tomorrow.

Filed Under: Featured News, What Is Amyloidosis Tagged With: amyloidosis, amyloidosis diagnosis, amyloidosis news, amyloidosis research, amyloidosis treatment, diagnosing amyloidosis

Seven Ways to Advocate for Your Health

January 25, 2019

If you have a rare disease it’s likely you’ll encounter medical professionals who have never heard of your condition. Therefore, it’s a good idea to always be an active member of your health care team. Guest blogger Lori Grover shares seven important ways you can self-advocate.

Filed Under: Featured News Tagged With: advocacy, amyloid assassin, amyloidosis, amyloidosis diagnosis, amyloidosis treatment, self-advocacy

VOICES of Amyloidosis

January 9, 2019

VOICES of Amyloidosis is a five-part campaign intended to give voice to those impacted by the disease. Each person in this video, which includes patients, caregivers, and expert doctors, have a story to tell in their own unedited words. You will feel their emotions and share their hope for the future.

Filed Under: Featured News, Mission News, What Is Amyloidosis Tagged With: amyloidosis, amyloidosis news, amyloidosis treatment, caregiver

2018: Thanks for a Great Year!

January 4, 2019

What a great first full year! We are proud to say we exceeded our goals for the year, thanks to YOU, our wonderful supporters. Thank you! Please enjoy reading our 2018 Report Card on how your support made a difference.

Filed Under: Featured News, Mission News Tagged With: amyloidosis, amyloidosis news

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