Mackenzie's Mission HomepageMackenzie's Mission

"What lies behind you and what lies in front of you, pales in comparison to what lies inside of you."
Ralph Waldo Emerson

Blog

DOCTORS of Amyloidosis

Twelve of the most notable experts in the fight against this disease share, in their own unedited words, their views on the state of the disease. This unparalleled collection of messages from leading experts is a priceless read to understand the disease both today, and tomorrow.

Seven Ways to Advocate for Your Health

If you have a rare disease it’s likely you’ll encounter medical professionals who have never heard of your condition. Therefore, it’s a good idea to always be an active member of your health care team. Guest blogger Lori Grover shares seven important ways you can self-advocate.

Clinical Trials 101

Clinical research is simply medical research involving people. There are two types, clinical studies (aka observational studies) and clinical trials. In this blog, we explore clinical trials and the basics of what you need to know.