At the Amyloidosis Speakers Bureau (ASB) we have spent a good deal of time reacting, assessing, and pivoting to a new normal during the pandemic. Here are the highlights for Spring 2020.
Each year on Rare Disease Day, the last day of February, millions of patients and their families around the world share their stories to promote awareness of the challenges, hopes, and needs of those living with rare diseases. Learn more about what we at Mackenzie’s Mission are doing to make a difference.
As a rare disease with a wide range of symptoms, Amyloidosis can be difficult for doctors to recognize. The disease presents itself differently depending on the type of Amyloidosis and which organs are affected. Delays in diagnosis are common, and some suffer for years while seeking answers. As a result, the road to diagnosis is often too long and winding, resulting in serious consequences for patients.