Blog

Charolotte Raymond

March 10, 2021

We’ve lost an amyloidosis warrior, a partner in the Amyloidosis Speakers Bureau, and a friend. Charolotte will always be in our hearts and prayers. We will miss her dearly.

AI, Protein Folding & Amyloidosis

February 18, 2021

AI is rapidly advancing the knowledge of protein misfolding, unlocking answers for amyloidosis which should lead to earlier diagnosis, improved treatment, and better patient survival.

When someone is suffering, we often feel helpless and don’t know exactly what to do or say. To be sure, there is no perfect response. However, according to Jen Marr, co-founder of Inspiring Comfort and an expert on human connection … there are things that we can do.

On the Other Side of COVID

January 31, 2021

How are you doing? I mean, how are you really doing? Often we answer automatically with a superficial, “I’m fine, thanks.” Let’s start a long-overdue conversation. Life is hard, and we are not okay. It’s about conversation – open, real discussions on connection and comfort and being part of something bigger. Guest writer Lori Grover shares wonderful and actionable ideas on how to survive the COVID pandemic … together.

1st FDA-Approved Drug for AL Amyloidosis

January 16, 2021

After decades of relying on treatments approved for other diseases, on January 15, 2021 the FDA approved the first drug for AL Amyloidosis. Truly a game-changing, monumental advancement in the treatment of this disease.

Charolotte Raymond

AI, Protein Folding & Amyloidosis

Comfort & Connection

On the Other Side of COVID

1st FDA-Approved Drug for AL Amyloidosis

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