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"What lies behind you and what lies in front of you, pales in comparison to what lies inside of you."
Ralph Waldo Emerson

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Rare Disease Day 2020

Each year on Rare Disease Day, the last day of February, millions of patients and their families around the world share their stories to promote awareness of the challenges, hopes, and needs of those living with rare diseases. Learn more about what we at Mackenzie’s Mission are doing to make a difference.

Amyloidosis: The Road to Diagnosis

As a rare disease with a wide range of symptoms, Amyloidosis can be difficult for doctors to recognize. The disease presents itself differently depending on the type of Amyloidosis and which organs are affected. Delays in diagnosis are common, and some suffer for years while seeking answers. As a result, the road to diagnosis is often too long and winding, resulting in serious consequences for patients.

2019: A Year of Impact!

WOW, what a year! We are proud to say we exceeded our goals for the year, thanks to YOU, our wonderful supporters! Please enjoy reading our 2019 Report Card on how your support helped fuel our work and new educational initiative.