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"What lies behind you and what lies in front of you, pales in comparison to what lies inside of you."
Ralph Waldo Emerson

Blog

ASB: 2020 Spring Update

April 15, 2020

At the Amyloidosis Speakers Bureau (ASB) we have spent a good deal of time reacting, assessing, and pivoting to a new normal during the pandemic. Here are the highlights for Spring 2020.

Filed Under: Featured News, Mission News, Speakers Bureau News Tagged With: amyloidosis, amyloidosis news, amyloidosis speakers bureau, patientsteachingstudents, speakers bureau news

Periorbital Purpura & Amyloidosis

March 10, 2020

Periorbital purpura may also be referred to as raccoon eyes or panda eyes. The appearance is usually that of quite severe bruising and is very suggestive of a diagnosis of AL amyloidosis.

Filed Under: Featured News, What Is Amyloidosis Tagged With: amyloidosis, amyloidosis diagnosis, diagnosing amyloidosis, panda eyes, periorbital purpura, purpura, raccoon eyes

FACES of Amyloidosis 2020

March 1, 2020

In celebration of Amyloidosis Awareness Month, we share our FACES of Amyloidosis 2020. Each is on their own journey and wants the world to know that this disease isn’t so rare, and as time passes there is more and more hope. We will never give up.

Filed Under: Featured News, Mission News Tagged With: amyloidosis, amyloidosis awareness month, FACES of Amyloidosis, raising awareness

Rare Disease Day 2020

February 29, 2020

Each year on Rare Disease Day, the last day of February, millions of patients and their families around the world share their stories to promote awareness of the challenges, hopes, and needs of those living with rare diseases. Learn more about what we at Mackenzie’s Mission are doing to make a difference.

Filed Under: Featured News Tagged With: amyloidosis, raising awareness, rare disease day

Amyloidosis: The Road to Diagnosis

February 22, 2020

As a rare disease with a wide range of symptoms, Amyloidosis can be difficult for doctors to recognize. The disease presents itself differently depending on the type of Amyloidosis and which organs are affected. Delays in diagnosis are common, and some suffer for years while seeking answers. As a result, the road to diagnosis is often too long and winding, resulting in serious consequences for patients.

Filed Under: Featured News, What Is Amyloidosis Tagged With: amyloid assassin, amyloidosis, amyloidosis diagnosis, diagnosing amyloidosis

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