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Featured News

CRISPR/Cas9 – Editing the Code of Life

March 20, 2021

The scientific world is abuzz … a Nobel Prize-winning technology called CRISPR/Cas9 can now edit our DNA. This programmable gene-editing technology, which is efficient, precise, and scalable, has inspired a gold rush of countless applications in medicine, agriculture and basic science.  In this blog we invite you to read more about this ground-breaking advance and how, with one course of treatment, it could potentially cure hereditary transthyretin (hATTR / ATTRv) amyloidosis.

Filed Under: Featured News, What Is Amyloidosis Tagged With: #clinicaltrials, #crispr, #crispr/cas9, amyloidosis, amyloidosis clinical trials, amyloidosis news, amyloidosis treatment, ATTR amyloidosis, attrv, hATTR, Hereditary Amyloidosis, hereditaryamyloidosis

Charolotte Raymond

March 10, 2021

We’ve lost an amyloidosis warrior, a partner in the Amyloidosis Speakers Bureau, and a friend. Charolotte will always be in our hearts and prayers. We will miss her dearly.

Filed Under: Featured News, Speakers Bureau News Tagged With: #amyloidosiswarrior, AL amyloidosis, amyloidosis, amyloidosis speakers bureau

AI, Protein Folding & Amyloidosis

February 18, 2021

AI is rapidly advancing the knowledge of protein misfolding, unlocking answers for amyloidosis which should lead to earlier diagnosis, improved treatment, and better patient survival.

Filed Under: Featured News, What Is Amyloidosis Tagged With: #deepmind, AI, amyloid protein, amyloidosis, amyloidosis diagnosis, amyloidosis news, amyloidosis research, Artificial Intelligence, ATTR amyloidosis, ATTRwt, diagnosing amyloidosis, light chain amyloidosis, Protein Folding, protein misfolding, wild-type amyloidosis

Comfort & Connection

February 3, 2021

When someone is suffering, we often feel helpless and don’t know exactly what to do or say. To be sure, there is no perfect response. However, according to Jen Marr, co-founder of Inspiring Comfort and an expert on human connection … there are things that we can do.

Filed Under: Featured News Tagged With: #caregivers, #comfort, #comfort&connection, #inspiringcomfort, #loneliness, #pawstocomfort, amyloidosis

On the Other Side of COVID

January 31, 2021

How are you doing? I mean, how are you really doing? Often we answer automatically with a superficial, “I’m fine, thanks.” Let’s start a long-overdue conversation. Life is hard, and we are not okay. It’s about conversation – open, real discussions on connection and comfort and being part of something bigger. Guest writer Lori Grover shares wonderful and actionable ideas on how to survive the COVID pandemic … together.

Filed Under: Featured News Tagged With: #COVID, #emotional difficulties, #mental health, #pandemic, #survival during COVID, amyloidosis

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Recent News

  • CRISPR/Cas9 – Editing the Code of Life
  • Charolotte Raymond
  • AI, Protein Folding & Amyloidosis
  • Comfort & Connection
  • On the Other Side of COVID

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