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Mission News

ASB: Our First Six Months

August 2, 2019

It’s been a quick six months since we launched the Amyloidosis Speakers Bureau, and we wanted to provide an update about our progress and all we have accomplished so far.

Filed Under: Featured News, Mission News, Speakers Bureau News Tagged With: advocacy, amyloidosis, amyloidosis news, amyloidosis speakers bureau, patientsteachingstudents, speakers bureau news

VOICES of Amyloidosis

January 9, 2019

VOICES of Amyloidosis is a five-part campaign intended to give voice to those impacted by the disease. Each person in this video, which includes patients, caregivers, and expert doctors, have a story to tell in their own unedited words. You will feel their emotions and share their hope for the future.

Filed Under: Featured News, Mission News, What Is Amyloidosis Tagged With: amyloidosis, amyloidosis news, amyloidosis treatment, caregiver

2018: Thanks for a Great Year!

January 4, 2019

What a great first full year! We are proud to say we exceeded our goals for the year, thanks to YOU, our wonderful supporters. Thank you! Please enjoy reading our 2018 Report Card on how your support made a difference.

Filed Under: Featured News, Mission News Tagged With: amyloidosis, amyloidosis news

Play FORE The Cure 2018

August 16, 2018

On August 6, 2018 we held our first charity golf tournament, Play FORE The Cure. It was a smashing success!

Filed Under: Featured News, Mission News Tagged With: amyloidosis

FACES of Amyloidosis

June 24, 2018

Each person in this video is affected by amyloidosis. Each has their own story to tell the world, which begins, but doesn’t end, here.

Filed Under: Featured News, Mission News Tagged With: amyloidosis

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Recent News

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  • Hereditary Amyloidosis Among Portuguese Americans

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