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The complexity of this disease makes diagnosis one of the biggest challenges affecting patient lives. It is not uncommon to hear from patients that it took multiple years and multiple doctors to ultimately arrive at a correct diagnosis, all the while the disease continued to progress. Until a cure is found, it is imperative to raise awareness within the medical community so that a diagnosis can be determined much sooner, enabling effective treatments and therapies to slow the disease progression and improve patient survival. Read how “looking” for amyloidosis made a difference for Dr. James Januzzi Jr., Cardiologist at Massachusetts General Hospital.
In one month, I’ve diagnosed more cases of ATTR cardiomyopathy than I did in 10 years. If you don’t look for it, you won’t find it.
And read what Matthew Trendowski, MD Candidate at Wayne State University School of Medicine had to say about our presentation.
I would highly recommend medical schools to allow a speaker from the Amyloidosis Speakers Bureau to give a talk on his/her medical journey. Our speaker was incredibly powerful, and shed light on an important disease that unfortunately has been improperly diagnosed for years. By allowing a speaker to provide his/her personal story, medical students will be much more informed about this surprisingly prevalent disease, which will help guide their clinical decisions as attending physicians.
In response, the ASB focuses on educating the next generation of doctors during medical school and residency through presentations from amyloidosis patients, accompanied by an educational video and online educational library. Donations are critical to helping us get speakers in front of students and physicians, and building our video library of presentations. The more donations we receive, the more we can educate, increasing the potential for earlier diagnoses and better patient survivorship.
To date, we have made over 250 presentations to more than 10,000 medical students and residents!