Your donation supports the Amyloidosis Speakers Bureau (ASB), an important initiative sponsored by Mackenzie’s Mission. The ASB focuses on educating the next generation of doctors during medical school through presentations from amyloidosis patients, accompanied by an online educational library. While our volunteer patient speakers are unpaid, we do reimburse their travel expenses. Thus donations are critical to helping us get speakers in front of students. The more donations we receive the more medical students we can educate, increasing the potential for earlier diagnoses and better patient survivorship. As of March 23, 2020 our 41 presentations have reached an estimated 9,600 future doctors!
In addition, money for research is critical to find answers and develop new treatments. However, the NIH currently funds only 11% of its applications, leaving a heavy burden on private foundations and individuals to help close the gap. As a result, we direct a portion of our donations and fundraising proceeds to multiple leading research institutions, such as the Mayo Clinic’s Amyloidosis Research Fund, Tufts Medical Center Amyloid and Myeloma Research Fund, and Boston University’s Amyloid Research Fund. For those monies donated to the Mayo Clinic, Dr. Morie Gertz explains in the video below where our donated dollars go.
Thanks to a generous patron covering all of our administrative expenses, 100% of your donation will make a difference in raising awareness to shorten the time to diagnosis, finding desperately needed treatments to extend lives, and finding a cure to save lives.
Being a registered 501(c)(3) public charity brings a responsibility to maintain a sound governance structure, run a cost-efficient operation, and provide transparency to our donors. We are extremely proud to have earned the Platinum level Seal of Transparency (the highest level available) by GuideStar, an organization committed to monitoring the nonprofit community and setting forth standards for best practices.