Slider
Featured Post
Light Chain (AL) Amyloidosis Clinical Practice Guidelines - American Society of Hematology 2026
The American Society of Hematology (ASH) has released new Clinical Practice Guidelines on the diagnosis of light chain (AL) amyloidosis, a rare and life-threatening bone marrow disorder. The guidelines present…
LIBRARY
Light Chain (AL) Amyloidosis Clinical Practice Guidelines…
The American Society of Hematology (ASH) has released new Clinical…
ASB Recognized as Leader in Early Medical…
The Amyloidosis Speakers Bureau (ASB) is recognized as a leader…
Patient Insights: It’s All In Your Head
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
Behind the Counter, Beside the Bed: The…
Ever wonder what truly happens after your doctor writes a…
Amyloidosis and the Eye
Amyloidosis can indeed be found in the eye according to…
Kidney Transplantation for Patients with AL Amyloidosis
Dr. Heather Landau, Director of the Amyloidosis Program at Memorial…
Patient Insights: My Doctor’s Persistence Kept Me…
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
Accelerating the Diagnosis of Cardiac Amyloidosis with…
What is Cardiac Amyloidosis? According to the University of Chicago,…
Disease Overview
Neuropathic Impact of Amyloidosis
Systemic amyloidosis is comprised of a group of rare disorders…
Weeds in the Garden: ABCs of AL…
Dr. Morie Gertz, hematologist, professor of medicine at the Mayo…
Overview of Amyloidosis for Patients
In this video “Amyloidosis Awareness” from the Amyloidosis Support Groups,…
AL Amyloidosis: The Past, Present, and Future
Dr. Morie Gertz, professor of medicine at the Mayo Clinic…
Hereditary Amyloidosis: The V122I Variant
Despite the evidence that a meaningful 3-4% of the US…
The Systemic Amyloidoses vs. Parkinson’s vs. Alzheimer’s
Current medical education on amyloid diseases is 25 years old…
AL Amyloidosis: Symptoms, Diagnostics and Challenges
Dr. Gurbakhash Kaur, co-director of the amyloidosis program at UT…
Diagnosing Amyloidosis: From Cardiology to Neurology –…
Dr. J. Mark Sloan, Associate Professor of Medicine, Boston University…
Symptoms
Amyloidosis and the Eye
Amyloidosis can indeed be found in the eye according to…
Amyloidosis’ Hidden Role in Heart Failure
Heart failure is a complex and debilitating condition affecting millions…
Neuropathic Impact of Amyloidosis
Systemic amyloidosis is comprised of a group of rare disorders…
Patient Insights: “Athlete’s Heart”
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
AL Amyloidosis: Diagnosis Begins With Suspicion
The diagnosis of amyloidosis can be challenging for several reasons.…
Macroglossia & Amyloidosis
Macroglossia is the abnormal enlargement of the tongue in proportion…
Amyloidosis and the Gut
Dr. Melissa Hershman, assistant professor from the OHSU Division of…
Hereditary Amyloidosis: The V122I Variant
Despite the evidence that a meaningful 3-4% of the US…
Diagnosis
Light Chain (AL) Amyloidosis Clinical Practice Guidelines…
The American Society of Hematology (ASH) has released new Clinical…
ASB Recognized as Leader in Early Medical…
The Amyloidosis Speakers Bureau (ASB) is recognized as a leader…
Accelerating the Diagnosis of Cardiac Amyloidosis with…
What is Cardiac Amyloidosis? According to the University of Chicago,…
Clinical Utility of AI Based Review of…
Dr. Faizi A. Jamal, Chief, Division of Cardiology and Director,…
Patient Insights: Think Beyond the Silos
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
Amyloidosis’ Hidden Role in Heart Failure
Heart failure is a complex and debilitating condition affecting millions…
Ejection Fraction: It’s Just a Fraction
Dr. Julie Rosenthal, Director of the Cardiac Amyloidosis Program at…
AL Amyloidosis: Diagnosis Begins With Suspicion
The diagnosis of amyloidosis can be challenging for several reasons.…
Treatment
Behind the Counter, Beside the Bed: The…
Ever wonder what truly happens after your doctor writes a…
Kidney Transplantation for Patients with AL Amyloidosis
Dr. Heather Landau, Director of the Amyloidosis Program at Memorial…
Patient Insights: Think Beyond the Silos
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
Patient Insights: Improving Communication Among Care Team
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
Patient Insights: Interpreting a Patient’s Issues
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
AMVUTTRA is now FDA-APPROVED for ATTR-CM in…
AMVUTTRA® (vutrisiran) was approved by the FDA in March 2025…
Autologous Stem Cell Transplantation in AL Amyloidosis:…
Dr. Heather Landau is an oncologist and hematologist at the…
Transthyretin Amyloidosis (ATTR) Treatments: Stabilizers, Silencers, Depleters,…
Transthyretin (TTR) is a protein, mainly produced by the liver.…
Caregivers
The Caregiver Role: Tips and Tricks to…
Whether it comes out of nowhere and flips your world…
Patient Insights: Impact on a Family
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
Role of Interdisciplinary Care Teams for Amyloidosis…
Dr. Melissa Lyle from the Mayo Clinic offers insights into…
Ensuring Adequate Racial and Ethnic Representation in…
Dr. Frederick Ruberg, cardiologist at the Boston University Amyloidosis Center,…
Racial and Ethnic Disparities in Cardiac Amyloidosis
Dr. Michelle Kittleson from Cedars-Sinai discusses the five domains defining…
Mastering the Art of Patient Care
Based on all the lessons she learned, coupled with the…
Patient Insights: Giving a devastating diagnosis
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
Multidisciplinary Care for Cardiac Amyloidosis Patients
Multi-systemic diseases such as amyloidosis are not only complex to…
Expert Insights
Kidney Transplantation for Patients with AL Amyloidosis
Dr. Heather Landau, Director of the Amyloidosis Program at Memorial…
Clinical Utility of AI Based Review of…
Dr. Faizi A. Jamal, Chief, Division of Cardiology and Director,…
Ejection Fraction: It’s Just a Fraction
Dr. Julie Rosenthal, Director of the Cardiac Amyloidosis Program at…
Weeds in the Garden: ABCs of AL…
Dr. Morie Gertz, hematologist, professor of medicine at the Mayo…
Do You Need a Heart Biopsy to…
Dr. Ahmad Masri, Director of the Cardiac Amyloidosis Program at…
Autologous Stem Cell Transplantation in AL Amyloidosis:…
Dr. Heather Landau is an oncologist and hematologist at the…
Harnessing Your Immune System: CAR-T and Bispecific…
Dr. Morie Gertz, professor of medicine at the Mayo Clinic…
ATTR Amyloidosis Treatments: Stabilizers and Silencers
Dr. Brett Sperry, cardiologist and director of the Cardiac Amyloidosis…
Patient Insights
Patient Insights: It’s All In Your Head
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
Patient Insights: My Doctor’s Persistence Kept Me…
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
Patient Insights: Think Beyond the Silos
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
Patient Insights: Improving Communication Among Care Team
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
Gesna: How Hereditary Cardiac Amyloidosis Affects Her…
View this short video from ASB patient educator Gesna about…
Patient Insights: “Athlete’s Heart”
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
Patient Insights: Interpreting a Patient’s Issues
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
Patient Insights: Mentally Fighting to Survive
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
Example Main Title
PODCAST
Join Mackenzie for an enlightening journey into the world of amyloidosis. Through candid conversations with patients, caregivers, and clinicians, she'll uncover the raw and unfiltered experiences of those living with this challenging condition. Delve into the latest medical advancements and treatments that are transforming lives, as we explore the profound impact of this disease and the hope on the horizon for improved patient care. Visit our podcast website, or find us on leading platforms, to see past episodes and subscribe for future episodes.
Join the Fight Against Amyloidosis!
Subscribe for Updates, Insights, and Ways to Make a Difference
