We at Mackenzie’s Mission just received a HUGE shout out of support from Jill Johnson and the nursing students at Carl Sandburg College! They’ve joined the fight against Amyloidosis today on Rare Disease Day. Fight on and thank you for your support!
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Adele Wineburgh says
I am so thrilled to see and hear about the awareness and fight for Amyloidosis
My beloved husband,father, brother, uncle, son and dearest friend passed away17 years ago from Amyloidosis
He was a young 58 treated at Boston medical lead by Dr Martha skinner
He had a stem cell transplant but unfortunately it was not a success.
He did live for 18 months which was really much longer then expected
My family is thrilled that this terrible disease is on the forefront.
So much research and study is needed to find a way to help patients with this terrible diagnosis
Thank you so much for giving hope to Amyloidosis