The Amyloidosis Speakers Bureau (ASB) is directed by an operating committee of volunteers, the majority of whom are amyloidosis patients. We collaborate as a team with respect and ethics, and act with a shared purpose.
Mackenzie Boedicker, Member & Patient
“The reason I love the ASB so much is the fact that it has the ability to make an impact in the lives of the next generation of amyloidosis patients and their families. I envision a world where amyloidosis of all types is diagnosed so early, that the consequences we currently face are non-existent. I believe that in conjunction with other efforts in the community, the ASB has the power to bring about that change.”
Charolotte Raymond, Member & Patient
“I have always been about ‘making a difference,’ so when I was asked to speak to second-year medical students at the Tufts University School of Medicine, I jumped at the chance. The presentation went better than we could have hoped, receiving great student response. I was hooked. I knew this was THE way we could make a REAL difference in the future of amyloidosis.”
Deb Boedicker, Member & Caregiver
“What got me excited about this important initiative was the focus on educating the all-important front-line doctors, who span a wide spectrum of specialties, and will have the ability to diagnose this disease much earlier than at present. This singular change, which will advance the introduction of treatment, will have a monumental impact on improving patient outcomes (survival).”