An inside look into the state of amyloidosis today, based on 575 online responses. Read about patient demographics, symptoms, getting to a diagnosis through the physician community, treatments, and how life has changed post-treatment.
Starting treatment for AL amyloidosis can be a scary and difficult. The uncertainty of it all can be overwhelming. If you’re worried about what you’re about to face, our treatment survival guide offers some tips and tricks from patients who have been there.
If you have a rare disease it’s likely you’ll encounter medical professionals who have never heard of your condition. Therefore, it’s a good idea to always be an active member of your health care team. Guest blogger Lori Grover shares seven important ways you can self-advocate.
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