amyloidosis news

Amyloidosis By The Numbers

August 23, 2019

An inside look into the state of amyloidosis today, based on 575 online responses. Read about patient demographics, symptoms, getting to a diagnosis through the physician community, treatments, and how life has changed post-treatment.

ASB: Our First Six Months

August 2, 2019

It’s been a quick six months since we launched the Amyloidosis Speakers Bureau, and we wanted to provide an update about our progress and all we have accomplished so far.

DOCTORS of Amyloidosis

March 10, 2019

Twelve of the most notable experts in the fight against this disease share, in their own unedited words, their views on the state of the disease. This unparalleled collection of messages from leading experts is a priceless read to understand the disease both today, and tomorrow.

VOICES of Amyloidosis

January 9, 2019

VOICES of Amyloidosis is a five-part campaign intended to give voice to those impacted by the disease. Each person in this video, which includes patients, caregivers, and expert doctors, have a story to tell in their own unedited words. You will feel their emotions and share their hope for the future.

2018: Thanks for a Great Year!

January 4, 2019

What a great first full year! We are proud to say we exceeded our goals for the year, thanks to YOU, our wonderful supporters. Thank you! Please enjoy reading our 2018 Report Card on how your support made a difference.