VOICES of Amyloidosis is a five-part campaign intended to give voice to those impacted by the disease. Each person in this video, which includes patients, caregivers, and expert doctors, have a story to tell in their own unedited words. You will feel their emotions and share their hope for the future.
Around the world, activities are going on all month, culminating today, to raise awareness of the 7,000 rare diseases. Amyloidosis is one of those rare diseases. Together, great efforts are being made to take rare disease research to an international level. Only by doing so can we guarantee rare disease research will be truly effective. […]