amyloidosis treatment

DOCTORS of Amyloidosis

March 10, 2019

Twelve of the most notable experts in the fight against this disease share, in their own unedited words, their views on the state of the disease. This unparalleled collection of messages from leading experts is a priceless read to understand the disease both today, and tomorrow.

Seven Ways to Advocate for Your Health

January 25, 2019

If you have a rare disease it’s likely you’ll encounter medical professionals who have never heard of your condition. Therefore, it’s a good idea to always be an active member of your health care team. Guest blogger Lori Grover shares seven important ways you can self-advocate.

VOICES of Amyloidosis

January 9, 2019

VOICES of Amyloidosis is a five-part campaign intended to give voice to those impacted by the disease. Each person in this video, which includes patients, caregivers, and expert doctors, have a story to tell in their own unedited words. You will feel their emotions and share their hope for the future.

Building a Caregiver Team

August 27, 2018

There are times when those afflicted with amyloidosis need assistance — a caregiver. In some instances, such as a stem cell transplant (SCT), the treatment is so extensive that securing a caregiver is required before treatment commences. It is for these more intensive situations that we thought we’d share some thoughts about how to build a caregiver team.

Rebuilding the Immune System

June 21, 2018

Losing one’s immune system is a serious consequence of a stem cell transplant, putting the body at risk for viral, fungal, and bacterial infections. Rebuilding the body’s immune system is a key part of the recovery.