amyloidosis

VOICES of Amyloidosis

January 9, 2019

VOICES of Amyloidosis is a five-part campaign intended to give voice to those impacted by the disease. Each person in this video, which includes patients, caregivers, and expert doctors, have a story to tell in their own unedited words. You will feel their emotions and share their hope for the future.

2018: Thanks for a Great Year!

January 4, 2019

What a great first full year! We are proud to say we exceeded our goals for the year, thanks to YOU, our wonderful supporters. Thank you! Please enjoy reading our 2018 Report Card on how your support made a difference.

Clinical Trials 101

October 17, 2018

Clinical research is simply medical research involving people. There are two types, clinical studies (aka observational studies) and clinical trials. In this blog, we explore clinical trials and the basics of what you need to know.

Amyloidosis ICD Diagnosis Codes

September 29, 2018

What are diagnosis codes and what are they used for? Here’s a brief summary.

Building a Caregiver Team

August 27, 2018

There are times when those afflicted with amyloidosis need assistance — a caregiver. In some instances, such as a stem cell transplant (SCT), the treatment is so extensive that securing a caregiver is required before treatment commences. It is for these more intensive situations that we thought we’d share some thoughts about how to build a caregiver team.