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amyloidosis

Worldwide Hotspots of Hereditary ATTR Amyloidosis (ATTRv)

January 26, 2023

Transthyretin Amyloidosis, or ATTR, is considered a single disease, however the diversity in its clinical presentation is staggering. In this blog, we’ll discuss some of the most common hereditary variants and how the disease manifestation differs around the world in documented hotspots.

Filed Under: Featured News, What Is Amyloidosis Tagged With: amyloidosis, amyloidosis variants, ATTR amyloidosis, attrv, global amyloidosis, hATTR, Hereditary Amyloidosis, worldwide amyloidosis

2022: Mackenzie’s Mission – Our Report Card

December 20, 2022

This past year was more of the same, but hitting a big milestone! With the help of so many, we continued to advance our dual mission of raising awareness and supporting research. Since we began …. For our raising awareness initiative – the Amyloidosis Speakers Bureau – we are SUPER PROUD to say we’ve given over 215 presentations to MORE THAN 10,000 medical students and residents!! For our supporting research initiative, we’ve given over $830,000!! Looking ahead, it’s all about continuing to do more of the same great work. We can’t do it without your support, passion, and shared determination to make a difference in the fight against amyloidosis. Thank you!

Filed Under: Featured News, Mission News Tagged With: amyloidosis

CRISPR/Cas9 – ATTR Clinical Trial Update

November 17, 2022

Per the National Institute of Health, “One of the most promising areas of research in recent years has been gene editing, including CRISPR/Cas9, for fixing misspellings in genes to treat or even cure many conditions.” In this piece we provide a clinical trial update for transthyretin (TTR) amyloidosis using this technology.

Filed Under: Featured News, What Is Amyloidosis Tagged With: #crispr, Amyloid cardiomyopathy, amyloidosis, amyloidosis diagnosis, amyloidosis research, amyloidosis treatment, ATTR amyloidosis, ATTRwt, hATTR

Heart Failure & Amyloidosis

October 27, 2022

Heart failure occurs when the heart muscle doesn’t pump blood as well as it should. Many medical conditions that damage the heart muscle can cause heart failure, such as Coronary artery disease, Heart attack, Obesity, Kidney disease, Diabetes, and Cardiomyopathy. Here we summarize how cardiac amyloidosis is associated with heart failure.

Filed Under: Featured News, What Is Amyloidosis Tagged With: Amyloid cardiomyopathy, amyloidosis, amyloidosis diagnosis, ATTR amyloidosis, ATTR-CM, cardiac amyloidosis, cardiomyopathy, diagnosing amyloidosis, heart failure

Over 10,000 medical students and residents!!

October 25, 2022

The Amyloidosis Speakers Bureau has now presented to over 10,000 medical students and residents!

Filed Under: Featured News, Speakers Bureau News Tagged With: #amyloidosisspeakersbureau, amyloidosis, patientsteachingstudents

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Recent News

  • Worldwide Hotspots of Hereditary ATTR Amyloidosis (ATTRv)
  • 2022: Mackenzie’s Mission – Our Report Card
  • CRISPR/Cas9 – ATTR Clinical Trial Update
  • Heart Failure & Amyloidosis
  • Over 10,000 medical students and residents!!

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