Cardiomyopathy is a broad term that is used to describe disease of the heart muscle, making it difficult for the heart to provide the body with an adequate blood supply. It can lead to heart failure and even death. In this article, we’ll discuss the types of cardiomyopathy and its connection to amyloidosis.
ATTR amyloidosis
Hereditary Amyloidosis Among Portuguese Americans
Americans of Portuguese descent are disproportionately impacted by hereditary ATTR (hATTR) amyloidosis, a rare, rapidly progressive, and debilitating disease affecting multiple organs and tissues. Watch this informative news segment featuring Dr. Anthony Geraci, a neurologist who specializes in managing hATTR amyloidosis. He is joined by Julio, who was diagnosed with the disease a few years ago, and his daughter and caregiver Renee. Together they explore the experience of living with this rare, genetic disease.
ASB: 2021 Year-End Review
The Amyloidosis Speakers Bureau (ASB) had a wonderful year in 2021, settling into a new normal of virtual presentations. We gave 61 presentations to 2,400 U.S. medical students and internal medicine residency programs. We invite you to read more about our exciting and trajectory-changing educational initiative.
THE POWER OF THE PATIENT/PHYSICIAN COLLABORATION
Amyloidosis: A Brief Overview
Amyloidosis is a “group of diseases” that have the common feature where abnormal proteins (or in some cases normal proteins) behave abnormally, and the breakdown product of these proteins fold upon themselves, creating amyloid” fibrils.” Amyloid fibrils may affect only a single organ or, often, are spread throughout the body. They can affect different organs in different people, and there are different types of amyloid proteins, making this complex disease often elusive to diagnose. Severe amyloidosis can result in life-threatening damage to these organs or even failure. This overview offers a brief summary of this complex disease.