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ATTR amyloidosis

Cardiomyopathy & Amyloidosis

April 28, 2022

Cardiomyopathy is a broad term that is used to describe disease of the heart muscle, making it difficult for the heart to provide the body with an adequate blood supply. It can lead to heart failure and even death. In this article, we’ll discuss the types of cardiomyopathy and its connection to amyloidosis.

Filed Under: Featured News, What Is Amyloidosis Tagged With: AL amyloidosis, amyloid protein, amyloidosis, amyloidosis diagnosis, ATTR amyloidosis, ATTRwt, cardiac amyloidosis, cardiomyopathy, heart failure

Hereditary Amyloidosis Among Portuguese Americans

March 11, 2022

Americans of Portuguese descent are disproportionately impacted by hereditary ATTR (hATTR) amyloidosis, a rare, rapidly progressive, and debilitating disease affecting multiple organs and tissues. Watch this informative news segment featuring Dr. Anthony Geraci, a neurologist who specializes in managing hATTR amyloidosis. He is joined by Julio, who was diagnosed with the disease a few years ago, and his daughter and caregiver Renee. Together they explore the experience of living with this rare, genetic disease.

Filed Under: Featured News, What Is Amyloidosis Tagged With: amyloidosis, amyloidosis news, ATTR amyloidosis, diagnosing amyloidosis, hATTR, Hereditary Amyloidosis

ASB: 2021 Year-End Review

December 14, 2021

The Amyloidosis Speakers Bureau (ASB) had a wonderful year in 2021, settling into a new normal of virtual presentations. We gave 61 presentations to 2,400 U.S. medical students and internal medicine residency programs. We invite you to read more about our exciting and trajectory-changing educational initiative.

Filed Under: Featured News, Mission News, Speakers Bureau News Tagged With: AL amyloidosis, amyloidosis, amyloidosis diagnosis, amyloidosis speakers bureau, ATTR amyloidosis, ATTRwt, diagnosing amyloidosis, light chain amyloidosis, patientsteachingstudents, raising awareness, wild-type amyloidosis

THE POWER OF THE PATIENT/PHYSICIAN COLLABORATION

December 7, 2021

This excellent video showcases how physicians can collaborate with their patients to work towards a diagnosis. When dealing with an uncommon disease, it’s critical for physicians to be curious, ask questions, and listen.

Filed Under: Featured News, Speakers Bureau News, What Is Amyloidosis Tagged With: AL amyloidosis, amyloidosis, amyloidosis diagnosis, ATTR amyloidosis, ATTRwt, cardiac amyloidosis, diagnosing amyloidosis, light chain amyloidosis, patientsteachingstudents, raising awareness, wild-type amyloidosis

Amyloidosis: A Brief Overview

August 25, 2021

Amyloidosis is a “group of diseases” that have the common feature where abnormal proteins (or in some cases normal proteins) behave abnormally, and the breakdown product of these proteins fold upon themselves, creating amyloid” fibrils.” Amyloid fibrils may affect only a single organ or, often, are spread throughout the body. They can affect different organs in different people, and there are different types of amyloid proteins, making this complex disease often elusive to diagnose. Severe amyloidosis can result in life-threatening damage to these organs or even failure. This overview offers a brief summary of this complex disease.

Filed Under: Featured News, What Is Amyloidosis Tagged With: AA Amyloidosis, AL amyloidosis, amyloidosis, amyloidosis diagnosis, ATTR amyloidosis, ATTRwt, diagnosing amyloidosis, light chain amyloidosis, Localized Amyloidosis, wild-type amyloidosis

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Recent News

  • Cardiomyopathy & Amyloidosis
  • Hereditary Amyloidosis Among Portuguese Americans
  • Proteinuria & Amyloidosis
  • 2021: The Virtual World Continued
  • ASB: 2021 Year-End Review

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