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heart failure

Multidisciplinary Care for Cardiac Amyloidosis Patients

June 24, 2023

Multi-systemic diseases such as amyloidosis are not only complex to diagnose, but also complex in the treatment and ongoing patient care. It takes a village. In this seminal piece, the American College of Cardiology (ACC) provides an Expert Consensus Decision Pathway on Comprehensive Multidisciplinary Care for the Patient With Cardiac Amyloidosis. An absolute must-read for cardiologists and other specialties such as neurology, gastroenterology, nephrology and hematology.

Filed Under: Featured News, What Is Amyloidosis Tagged With: AL amyloidosis, Amyloid cardiomyopathy, amyloidosis, amyloidosis treatment, ATTR amyloidosis, ATTR-CM, attrv, ATTRwt, cardiac amyloidosis, cardiology, gastroenterology, hATTR, heart failure, hematology, Hereditary Amyloidosis, light chain amyloidosis, nephrology, neurology, wild-type amyloidosis

Hereditary Amyloidosis: The V122I Variant

March 30, 2023

Despite the evidence that a meaningful 3-4% of the US Black population of West African ancestry likely carries the V122I genetic mutation, hereditary TTR amyloidosis remains significantly underdiagnosed and undertreated in this population. Amyloidosis can be devastating to both patients and their families. Increased awareness of the disease, availability of testing, and FDA-approved therapies are slowly beginning to shift this dynamic. However, there is still much work to be done to close the gap between diagnosed cases and the population estimated to be affected.

Filed Under: Featured News Tagged With: Amyloid cardiomyopathy, amyloidosis, amyloidosis diagnosis, ATTR amyloidosis, attrv, hATTR, hATTR-CM, heart failure, Hereditary Amyloidosis

Heart Failure & Amyloidosis

October 27, 2022

Heart failure occurs when the heart muscle doesn’t pump blood as well as it should. Many medical conditions that damage the heart muscle can cause heart failure, such as Coronary artery disease, Heart attack, Obesity, Kidney disease, Diabetes, and Cardiomyopathy. Here we summarize how cardiac amyloidosis is associated with heart failure.

Filed Under: Featured News, What Is Amyloidosis Tagged With: Amyloid cardiomyopathy, amyloidosis, amyloidosis diagnosis, ATTR amyloidosis, ATTR-CM, cardiac amyloidosis, cardiomyopathy, diagnosing amyloidosis, heart failure

Cardiomyopathy & Amyloidosis

April 28, 2022

Cardiomyopathy is a broad term that is used to describe disease of the heart muscle, making it difficult for the heart to provide the body with an adequate blood supply. It can lead to heart failure and even death. In this article, we’ll discuss the types of cardiomyopathy and its connection to amyloidosis.

Filed Under: Featured News, What Is Amyloidosis Tagged With: AL amyloidosis, amyloid protein, amyloidosis, amyloidosis diagnosis, ATTR amyloidosis, ATTRwt, cardiac amyloidosis, cardiomyopathy, heart failure

Bicep Bunching & Amyloidosis

September 16, 2020

Often called “Popeye Deformity,” bicep bunching is visible when the patient flexes their arm, giving the appearance of popeye-like arms. While the result of a torn tendon, be aware it can be a leading indicator of more serious issues.

Filed Under: Featured News, What Is Amyloidosis Tagged With: amyloidosis, amyloidosis diagnosis, ATTR amyloidosis, ATTRwt, bicep bunching, cardiac amyloidosis, diagnosing amyloidosis, heart failure, popeye's biceps, popeye's deformity, tendon rupture, TTR cardiac amyloidosis, wild-type amyloidosis

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Recent News

  • Inflation Reduction Act of 2022 & Amyloidosis
  • A Patient Guide for Understanding Amyloidosis
  • Multidisciplinary Care for Cardiac Amyloidosis Patients
  • ATTR-CM: Don’t Assume it’s Wild-Type TTR Amyloidosis
  • Helping Patients Find Their Voice

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