The content of medical education is appropriately clinically centered. The delivery of this content remains relatively unchanged over the decades – typically taught by medical professionals through lectures, PowerPoint presentations, and patient case studies. We posit that there is an essential missing component: the patient voice. During the didactic years, medical students rarely hear from patients about their symptoms, diagnostic journey, emotional management, support and resources, and relationship with the medical community. By humanizing medical didactic education, patient insights can offer an impactful and durable education that complements traditional didactics, developing what we believe will be better and more empathetic future medical practitioners.
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FACES of Amyloidosis 2023
In celebration of Amyloidosis Awareness Month, we are excited to share our FACES of Amyloidosis 2023.
Each person in this video is affected by amyloidosis. Wanting to put a face with this disease, they also want you to know they embrace the challenge and fight for living life.
Amyloidosis is a rare and incurable disease, affecting people in different ways. It’s complexity and nature of symptoms often delays the time to diagnosis, during which the disease continues to advance. Timely diagnosis impacts the trajectory of survival and today is arguably the biggest challenge patients face, especially with more and more effective treatments available.
A huge thank you to the many that participated, for they are the true warriors.
The push to raise awareness is intensifying.
The fight to find a cure is ON.
A special thank you to Andra Day. Her song “Rise Up” and amazing voice brought these FACES to life.
FACES of Amyloidosis 2020
In celebration of Amyloidosis Awareness Month, we share our FACES of Amyloidosis 2020.
Each person in this video is affected by amyloidosis. Each is on their own journey and wants the world to know that this disease isn’t so rare, and as time passes there is more and more hope.
Amyloidosis is a rare and incurable disease, affecting people in different ways. As a result, this often slows the diagnosis time, during which the disease continues to advance. Accurate diagnosis as to the type of amyloidosis is critical, as it directly determines the path of treatment. Timely diagnosis can also impact the trajectory of survival.
Amyloidosis knows no boundaries. Powerful words from two amyloidosis survivors …
Amyloidosis does not discriminate. It will take the young, the old, male, female and all races and socioeconomic levels. — Jill J.
Amyloidosis is a master of disguises. — Robin H.
A huge thank you to those that participated, for they are the true warriors.
The focus to find answers, improved treatments, and a cure is stronger than ever, and the initiatives to raise awareness are better than ever.
We will never give up.
A special thank you to Andra Day. Her song “Rise Up” and amazing voice brought these FACES to life.
FACES of Amyloidosis 2018
Each person in this video is affected by amyloidosis. Each has their own story to tell the world, which begins, but doesn’t end, here.
Amyloidosis is a rare and incurable disease, affecting people in different ways. As a result, this often slows the diagnosis time, during which the disease continues to advance. Accurate diagnosis as to the type of amyloidosis is critical, as it directly determines the path of treatment.
Amyloidosis knows no boundaries. In the words of Jill Johnson, the last face in the video, “… amyloidosis does not discriminate. It will take the young, the old, male, female and all races and socioeconomic levels.”
A huge thank you to those that participated, for they are the true fighters.
The push to raise awareness is intensifying.
The fight to find a cure is ON.
A special thank you to Andra Day. Her song “Rise Up” and amazing voice brought these stories to life.
