• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar

Mackenzie's Mission HomepageMackenzie's Mission

DONATE Mackenzies Mission Donate
  • Mission
  • About
    • The Story
    • Board
  • Resources
    • Resource List
    • What Is Amyloidosis
  • Speakers Bureau
    • About ASB
    • ASB Operating Committee
  • Fundraisers
  • Blog
  • Contact

raising awareness

FACES of Amyloidosis 2023

March 20, 2023

In celebration of Amyloidosis Awareness Month, we are excited to share our FACES of Amyloidosis 2023. Each person in this video is affected by amyloidosis. Wanting to put a face with this disease, they also want you to know they embrace the challenge and fight for living life.

Filed Under: Featured News Tagged With: amyloidosis, FACES 2023, FACES of Amyloidosis, raising awareness

Carpal Tunnel & Amyloidosis – An Update

July 27, 2022

In the amyloidosis community, we are quickly learning that carpal tunnel syndrome can be one of the earliest symptoms/indicators of amyloidosis, sometimes presenting up to a decade before diagnosis. In addition, it is suspected that amyloidosis is not as rare as we once thought. Interestingly, carpal tunnel release surgery is helping to illustrate just that.

Filed Under: Featured News, What Is Amyloidosis Tagged With: amyloidosis, amyloidosis diagnosis, amyloidosis research, ATTR amyloidosis, ATTRwt, cardiac amyloidosis, hATTR, raising awareness, wild-type amyloidosis

Proteinuria & Amyloidosis

February 24, 2022

Proteinuria, which has been described as foamy urine, is a common symptom of multiple conditions and diseases. It can be temporary, or persistent, depending on the associated cause. Amyloidosis may be one of those causes.

Filed Under: Featured News, What Is Amyloidosis Tagged With: AL amyloidosis, amyloidosis, amyloidosis diagnosis, diagnosing amyloidosis, light chain amyloidosis, raising awareness

ASB: 2021 Year-End Review

December 14, 2021

The Amyloidosis Speakers Bureau (ASB) had a wonderful year in 2021, settling into a new normal of virtual presentations. We gave 61 presentations to 2,400 U.S. medical students and internal medicine residency programs. We invite you to read more about our exciting and trajectory-changing educational initiative.

Filed Under: Featured News, Mission News, Speakers Bureau News Tagged With: AL amyloidosis, amyloidosis, amyloidosis diagnosis, amyloidosis speakers bureau, ATTR amyloidosis, ATTRwt, diagnosing amyloidosis, light chain amyloidosis, patientsteachingstudents, raising awareness, wild-type amyloidosis

THE POWER OF THE PATIENT/PHYSICIAN COLLABORATION

December 7, 2021

This excellent video showcases how physicians can collaborate with their patients to work towards a diagnosis. When dealing with an uncommon disease, it’s critical for physicians to be curious, ask questions, and listen.

Filed Under: Featured News, Speakers Bureau News, What Is Amyloidosis Tagged With: AL amyloidosis, amyloidosis, amyloidosis diagnosis, ATTR amyloidosis, ATTRwt, cardiac amyloidosis, diagnosing amyloidosis, light chain amyloidosis, patientsteachingstudents, raising awareness, wild-type amyloidosis

  • Go to page 1
  • Go to page 2
  • Go to Next Page »

Primary Sidebar

Recent News

  • ATTR-CM: Don’t Assume it’s Wild-Type TTR Amyloidosis
  • Helping Patients Find Their Voice
  • Hereditary Amyloidosis: The V122I Variant
  • FACES of Amyloidosis 2023
  • Hereditary Amyloidosis: The T60A Variant

Be A Part Of Our Mission!

Join our mailing list to receive the latest news and updates from our team.

You have Successfully Subscribed!

  • Mission
  • About
  • Resources
  • Speakers Bureau
  • Fundraisers
  • Blog
  • Contact

Registered 501(c)(3) · Contact · Copyright © 2023 · Mackenzies Mission - All Rights Reserved