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raising awareness

Proteinuria & Amyloidosis

February 24, 2022

Proteinuria, which has been described as foamy urine, is a common symptom of multiple conditions and diseases. It can be temporary, or persistent, depending on the associated cause. Amyloidosis may be one of those causes.

Filed Under: Featured News, What Is Amyloidosis Tagged With: AL amyloidosis, amyloidosis, amyloidosis diagnosis, diagnosing amyloidosis, light chain amyloidosis, raising awareness

ASB: 2021 Year-End Review

December 14, 2021

The Amyloidosis Speakers Bureau (ASB) had a wonderful year in 2021, settling into a new normal of virtual presentations. We gave 61 presentations to 2,400 U.S. medical students and internal medicine residency programs. We invite you to read more about our exciting and trajectory-changing educational initiative.

Filed Under: Featured News, Mission News, Speakers Bureau News Tagged With: AL amyloidosis, amyloidosis, amyloidosis diagnosis, amyloidosis speakers bureau, ATTR amyloidosis, ATTRwt, diagnosing amyloidosis, light chain amyloidosis, patientsteachingstudents, raising awareness, wild-type amyloidosis

THE POWER OF THE PATIENT/PHYSICIAN COLLABORATION

December 7, 2021

This excellent video showcases how physicians can collaborate with their patients to work towards a diagnosis. When dealing with an uncommon disease, it’s critical for physicians to be curious, ask questions, and listen.

Filed Under: Featured News, Speakers Bureau News, What Is Amyloidosis Tagged With: AL amyloidosis, amyloidosis, amyloidosis diagnosis, ATTR amyloidosis, ATTRwt, cardiac amyloidosis, diagnosing amyloidosis, light chain amyloidosis, patientsteachingstudents, raising awareness, wild-type amyloidosis

FACES of Amyloidosis 2020

March 1, 2020

In celebration of Amyloidosis Awareness Month, we share our FACES of Amyloidosis 2020. Each is on their own journey and wants the world to know that this disease isn’t so rare, and as time passes there is more and more hope. We will never give up.

Filed Under: Featured News, Mission News Tagged With: amyloidosis, amyloidosis awareness month, FACES of Amyloidosis, raising awareness

Rare Disease Day 2020

February 29, 2020

Each year on Rare Disease Day, the last day of February, millions of patients and their families around the world share their stories to promote awareness of the challenges, hopes, and needs of those living with rare diseases. Learn more about what we at Mackenzie’s Mission are doing to make a difference.

Filed Under: Featured News Tagged With: amyloidosis, raising awareness, rare disease day

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Recent News

  • ATTR-CM (cardiomyopathy) vs ATTR-PN (peripheral neuropathy)
  • FDA Approved AMVUTTRA for hATTR
  • Peripheral Neuropathy & Amyloidosis
  • Cardiomyopathy & Amyloidosis
  • Hereditary Amyloidosis Among Portuguese Americans

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