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Amyloidosis By The Numbers

August 23, 2019

An inside look into the state of amyloidosis today, based on 575 online responses. Read about patient demographics, symptoms, getting to a diagnosis through the physician community, treatments, and how life has changed post-treatment.

Filed Under: Featured News, What Is Amyloidosis Tagged With: amyloid assassin, amyloidosis, amyloidosis clinical trials, amyloidosis diagnosis, amyloidosis news, amyloidosis recovery, amyloidosis research, amyloidosis treatment, asct, bone marrow transplant, clinical trials, diagnosing amyloidosis, sct, stem cell transplant

Building a Caregiver Team

August 27, 2018

There are times when those afflicted with amyloidosis need assistance — a caregiver. In some instances, such as a stem cell transplant (SCT), the treatment is so extensive that securing a caregiver is required before treatment commences. It is for these more intensive situations that we thought we’d share some thoughts about how to build a caregiver team.

Filed Under: Featured News Tagged With: amyloidosis, amyloidosis recovery, amyloidosis treatment, asct, caregiver, sct, stem cell transplant

Rebuilding the Immune System

June 21, 2018

Losing one’s immune system is a serious consequence of a stem cell transplant, putting the body at risk for viral, fungal, and bacterial infections. Rebuilding the body’s immune system is a key part of the recovery.

Filed Under: Featured News, What Is Amyloidosis Tagged With: amyloidosis, amyloidosis recovery, amyloidosis treatment, asct, bone marrow transplant, immune system, rebuilding immune system, revaccinate, revaccination, sct, stem cell transplant, vaccination post-SCT

Transplant: Inpatient vs Outpatient

May 13, 2018

A stem cell transplant is a complex treatment that typically takes four to six weeks and is performed inpatient, outpatient, or some combination, depending on the hospital. There are meaningful differences between inpatient and outpatient that are worth knowing about.

Filed Under: Featured News, What Is Amyloidosis Tagged With: amyloidosis, amyloidosis treatment, asct, bone marrow transplant, Boston medical center, caregiver, Gertz, mayo clinic, Sanchorawala, sct, stem cell transplant

The role of a caregiver

April 2, 2018

Caregivers play an important role during the treatment of amyloidosis. Hear experiences from two perspectives – a caregiver and a patient.

Filed Under: Featured News Tagged With: amyloidosis, amyloidosis recovery, amyloidosis treatment, asct, caregiver, sct, stem cell transplant

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