The most critical issue for patients with systemic amyloidosis is the lack of recognition of the signs and symptoms of the disorder by physicians. This results in delayed diagnosis and frankly, the more advanced the disease is at presentation, the sicker the patient is and the harder he/she is to treat – despite having effective therapies. The value of the Amyloidosis Speakers Bureau cannot be underestimated. Patient educators, providing first-hand information to students and trainees is impactful and I believe the most efficient way to spread awareness, improve recognition and ultimately save lives.
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Heather J. Landau, M.D.
November 06, 2023