There is a major educational gap leading to the late diagnosis of amyloidosis. Thanks to the ASB providers across the country are being instructed on techniques to suspect and recognize amyloidosis and how to efficiently make the diagnosis in a timely fashion.I strongly support incorporation of the ASB into the curriculum of all medical students, all residents, and subspecialty fellows in cardiology, nephrology, and neurology. Comprehensive education remains the best strategy to save lives for this rare disorder and I am strongly supportive in actively participating in the ASB.
I had the privilege of participating in a publication on the Amyloidosis Speakers Bureau, which plays a vital role in medical education of students, residents and fellows. Their patient educators are not just knowledgeable but also incredibly passionate about raising awareness and improving patient outcomes for amyloidosis. Their dedication to accelerating diagnosis is truly commendable. I believe that their contributions to medical education are invaluable in the fight against this challenging and rare disease. Thank you to ASB for making a difference in the lives of patients and healthcare professionals.
I recommend that your medical education take advantage of the Amyloidosis Speakers Bureau (ASB), a novel contemporary educational resource for today’s medical students and trainees. There has been a paradigm shift in the diagnosis and treatment of systemic amyloidosis. Tomorrow’s doctors need to learn about this. The ASB is designed to make a durable impression on those who will be diagnosing this disease in the not too distant future, because of the quality of their speakers, who are real-life patients, and the up-to-date nature of their extensive educational packet. I strongly encourage you to integrate the resources made available by the ASB into your medical school curriculum and residency didactic. It will make a difference.
The most critical issue for patients with systemic amyloidosis is the lack of recognition of the signs and symptoms of the disorder by physicians. This results in delayed diagnosis and frankly, the more advanced the disease is at presentation, the sicker the patient is and the harder he/she is to treat – despite having effective therapies. The value of the Amyloidosis Speakers Bureau cannot be underestimated. Patient educators, providing first-hand information to students and trainees is impactful and I believe the most efficient way to spread awareness, improve recognition and ultimately save lives.
The Amyloidosis Speakers Bureau has accomplished, through a novel educational initiative, what many had envisioned for years, namely educating a large cadre of future providers about the need for early recognition of amyloidosis. At our institution, Columbia University Irving Medical Center, our ASB seminar for medical students is the highlight of the cardiac pathophysiology course, bringing to life the real world implications of early diagnosis of individuals with amyloidosis.
The work of the Amyloidosis Speakers Bureau is invaluable in raising awareness and promoting early diagnosis of amyloidosis: the key to improving patient outcomes. Personal interaction with a patient with a rare disease provides students with an unparalleled learning experience from the best possible source, the patient. Most importantly, these impactful experiences will help students recognize the critical nature of a holistic approach to medicine and the importance of always putting the patient first.