I am delighted to express my gratitude for the impactful presentation by Lane from the ASB. The personal journey Lane shared resonated with our attendees offering a powerful perspective on the patient experience and fostered meaningful discussions. The ASB’s commitment to bridging the gap between healthcare professionals and patients is evident in their approach, which goes beyond the conventional scope of medical education. We appreciate the organization’s dedication to making a positive impact, and we eagerly anticipate future collaborations.
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Glenna Regan, MS, PA-C
A patient educator from the ASB presented for our didactic students. The presentation included a great short video discussing amyloidosis pathophysiology signs and symptoms, diagnostics, and treatments, followed by the patient educator’s journey to being diagnosed with amyloidosis, including how the disease likely could have been diagnosed sooner if there was better disease awareness among clinicians. It was very eye opening and I highly recommend this to all PA programs!
George Borrelli, D.O., M.S., FACOEP
The Amyloidosis Speakers Bureau has given our institution a unique opportunity to educate future healthcare providers on the early recognition of Amyloidosis. The experience of having a live panel to discuss a patient’s journey through diagnosis and treatment has provided an invaluable learning opportunity for faculty and staff. I would highly recommend the Amyloidosis Speakers Bureau to complement any medical teaching curriculum.
Kerry A. Esquitin, MD
The ‘Patient as Professor’ session is certainly one of the highlights of the cardiology course at Columbia University Irving Medical Center. In listening to the journey of a patient with amyloidosis from diagnosis through treatment, the pathophysiology of a disease process is suddenly brought to life in the stories and insights shared by our wonderful guest speaker. The students gain a deep appreciation for the many physical, emotional, social, and financial implications of chronic disease. As future leaders in healthcare, this invaluable experience also inspires our students to pursue clinical and research activities to advance the field of medicine and improve the lives of patients with chronic illness.
Mohan Ramkumar, MB;BS
We have hosted a speaker from the ASB for the past two years. The organization is wonderful to work with and offers different options to fit the educational needs of our students. Both the speakers we hosted were wonderful and the feedback from the students was uniformly positive. To paraphrase a student’s comment, “This is an amazing way to raise awareness about amyloidosis…the opportunity to hear from a real person helped to humanize the classroom and was a great learning experience.”
Kimberly Densmore
This organization is very well-run and professional. The organizer for our session, Deb Boedicker, is exactly the type of person you would want to help organize a session and moderate the panel. She is personable, communicative, and professional. The speakers were engaging, well-informed and also delivered some great first-hand advice to students on how to approach patients. They were quite encouraging and the format of the panel made for a very efficient session.
Michael P. Rowane, DO, MS, FAAFP, FAAO
Over the last several years we have incorporated excellent speakers from the Amyloidosis Speakers Bureau to present our LECOM Grand Round series every year. The most recent grand rounds, “From Symptoms to Diagnosis to Treatment: A Patient’s Journey with Amyloidosis,” gave the group a rare perspective from a patient with amyloidosis. This offered a well-received and valuable perspective to our audience of 3rd and 4th year osteopathic medical students, along with our participating clinical training partners for their interns, residents, fellows and faculty. We are grateful for this engaging grand round presentation and hope to continue having the Amyloidosis Speakers Bureau raise awareness for our medical students and affiliated resident physicians.
Darla L. McCarthy, PhD
My students benefited greatly from the opportunity to hear Christine talk about her experience with amyloidosis. Christine is an outstanding, engaging speaker — she is very knowledgeable about her disease, and effective at communicating the impact her experience has had on herself and her family. Students greatly appreciated the chance to hear about amyloidosis from a patient, and many reported that the session helped them to better understand how to support patients who are struggling through a long and sometimes convoluted diagnostic process. They also gained an appreciation for the need for increased awareness of amyloidosis and other relatively rare diseases. I highly recommend the inclusion of a patient visit facilitated by the ASB into the pre-clinical curriculum at any medical program!
Gordon Huggins, MD
By making patient speakers and educational materials curated by ASB’s medical advisors available to medical schools, it is my hope that the Amyloidosis Speaker Bureau will help form durable impressions on medical students and physicians that will translate to more widespread awareness, faster diagnoses, earlier initiation of treatment, and ultimately better survival for amyloid patients. I encourage you to integrate the resources made available by the ASB into your annual curriculum, as it has the potential to significantly alter the course of this disease.
Carol A Waksmonski, MD
The students really appreciated hearing about the disease from the patient’s perspective. It was a very moving and thought-provoking experience. It is one thing to read about a disease. It becomes an unforgettable experience to hear an actual patient describe their clinical story.
