It’s one thing to know about the clinical presentation of a disease but to know what the patient experiences while having the disease can be a totally different thing, and can only be truly expressed by the patients themselves. These patient experiences can be harder to understand for us medical students but supportive group talks like this can really help us in understanding how a disease really affects a person from its onset to the present moment.
I believe that this experience can assist other schools and other health professional students to understand the patient’s perspective on a disease or diagnosis as well as really put into perspective the knowledge or limited knowledge that we all have as future healthcare professionals. It is incredibly important to humanize the medicine and through panels like these we are able to humanize what we do and really see the impacts, both positive and negative, that a patient may experience which will make us better caregivers.
This was an incredible experience that gave me the opportunity to learn about amyloidosis from the patient’s perspective. This will no longer just be another disease I have to memorize; it’s become more personable and I believe I am more likely to recognize it in clinical practice going forward.
As a medical student, I have spoken to several patients and have participated in many patient presentations, but they always seem to miss the mark. We need to hear about the emotional aspects and challenges at home that accompany the journey to diagnosis and treatment. This presentation covered all of that with the clinical information included.
Before, I had only barely remembered amyloidosis by a brief mention in lectures, but this session really illustrated how the disease could severely impact someone’s life. Furthermore, I appreciated the patient’s narrative details, as she highlighted important considerations when delivering patient care that are often overlooked by healthcare professionals, such as basic empathy and compassion. I think the brief video at the beginning was a good illustration of the disease, as I had forgotten many of the details, and our lectures did not cover many of the specifics.
There’s no more memorable way to learn the signs of a disease than hearing directly from a patient about their story living with it. This was a great opportunity to learn about an under-recognized disease that gets relatively little exposure in medical school curriculum. Elizabeth’s story was powerful and honest, revealing ways that the medical community can do a much better job recognizing Amyloidosis and caring for patients living with it.
The speaker’s ability to put a face and experience behind a disease is so much stronger than a textbook will ever be. I will now be much more likely to appropriately add amyloidosis to a differential diagnosis moving forward in my clinical rotations and career.
As medical students we often only get the textbook definition of so many diseases, and when we read over the symptoms and treatments we merely just memorize and pass them over. Mackenzie’s Mission brings so much more than just the textbook definition of Amyloidosis. It brings the emotion, the struggle, pain, frustration, things that we don’t see on paper. This is so important for us as future physicians to see and hear, because this disease is not just a question on the test it is somebody’s life. And, it truly reminded me of why I am here. More medical students need to hear this!
This was absolutely an informative and helpful experience for me as a medical student. I would argue there are not enough opportunities for preclinical students to hear directly from patients, and having such a wonderful speaker take us through her entire health journey was quite valuable. I genuinely feel like I’ve started some trains of thought on how to better serve patients with complex diseases that I will be able to continue in the future, regardless of if I treat patients with amyloidosis specifically or not.
THIS is what medical schools should invest more time in.