According to the Mayo Clinic, Amyloidosis is a rare disease that occurs when a substance called amyloid builds up in your organs. Amyloid is an abnormal protein that is produced in your bone marrow and can be deposited in any tissue or organ. Amyloidosis can affect different organs in different people, and there are different types of amyloid. This disease frequently affects the heart, kidneys, liver, spleen, nervous system and digestive tract. Severe amyloidosis can lead to life-threatening organ failure.
VOICES of Amyloidosis is a five-part campaign intended to give voice to those impacted by the disease. Each person in VOICES, which includes patients, caregivers, and expert doctors, has a story to tell in their own unedited words. You will feel their emotions and share their hope for the future.
Thank you for reading and sharing far and wide, as the more people that know about this disease, the better the odds are to advance the timing of diagnosis, find answers for improved treatments, and ultimately develop a cure.
This is their message.
Please scroll down to see each of the five videos.
Part 1 of 5
Part 2 of 5
Part 3 of 5
Part 4 of 5
Part 5 of 5
Charolotte Raymond says
Outstanding!! I have posted it to my Facebook and will post each new segment as they come out.
Thank you for this, Deb.
Millie Herrera says
My father is featured on second voices of amyladosis. He was my best friend and I miss him every day. We lost dad on December 18, 2017 maybe two months after his diagnosis.
Today is Valentines day and in five weeks I’m going to get married to a wonderful man. I’m thankful my father got to speak to my fiancé a day before he passed. As the wedding gets close I miss my father more and more.
Thank you for making these videos and spreading awareness of this rare disease.