Amyloidosis Alliance
- Amyloidosis Clinical Resources App for healthcare professionals – Developed and maintained by the Amyloidosis Research Consortium, this app is free and available for download from the App Store and GooglePlay. Amyloidosis patients are encouraged to tell their medical teams about the new app and to advocate for all healthcare professionals to download and use this extensive resource.
Amyloidosis Foundation
- Provides educational material, financial resources toward medicine, as well as caregiver resources.
Amyloidosis Ireland
- Volunteer organisation advocating for and empowering ATTR amyloidosis patients across all of Ireland.
Amyloidosis Program of Calgary
- A multidisciplinary program that brings together expertise from multiple specialties to deliver - and improve - integrated care for amyloidosis patients in the Calgary region.
Amyloidosis Research Consortium
- Dramatically improving the lives of patients with amyloidosis and accelerating cutting edge research through collaborative, groundbreaking initiatives.
Amyloidosis Support Network
- Online patient support community that is powered by BensFriends.org, a network of patient support communities for rare diseases.
Canadian Amyloidosis Support Network
- Committed to making a positive difference in the lives of amyloidosis patients and families by promoting awareness, offering patient support, and funding high-value research projects.
CaringBridge
– Connecting family and friends through any health journey.
EveryLife Foundation for Rare Diseases
– Advocating for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments, and cures.
Family Caregiver Alliance
– Resources to improve the quality of the life for family caregivers and the people who receive their care.
Global Genes
- Dedicated to eliminating the burdens and challenges of rare diseases for patients and families globally.
Healthwell Foundation
- Co-pay fund for amyloidosis may be currently closed, but you can sign up to receive alerts when the fund opens.
National Organization for Rare Disorders (NORD)
- NORD advances practical, meaningful, and enduring change so people with rare diseases can live their fullest and best lives. Does offer travel assistance for access to clinical trials for Amyloid.
NeedyMeds
- A comprehensive resource for finding patient assistance programs, including those related to amyloidosis. They provide information on prescription assistance, co-pay programs, and other financial aid options.
oneAMYLOIDOSISvoice
- Created to transform the health of those impacted by amyloidosis through a collaborative digital platform that provides greater disease knowledge, emotional support and empowerment.
Pan Foundation
- Fund for financial assistance toward treatment. May be closed, but sign up to receive alerts when fund opens.
Rare Life Solutions
- We forge the connections that engage, unify, and amplify the voices of patients, advocates, and caregivers to inform and accelerate the development and commercialization of emerging treatments.
Rare New England
- Bringing together New England patients, families and providers touched by rare and complex disorders.
TTR Amyloidosis Canada
- Advancing research, improving awareness, and enhancing quality of life for those individuals living with TTR amyloidosis.