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ATTR Amyloidosis Treatments: Stabilizers and Silencers
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Overview of Amyloidosis for Patients
In this video “Amyloidosis Awareness” from the Amyloidosis Support Groups,…
The Use of RNA Interference Science in…
Hereditary transthyretin amyloidosis (hATTR) is a severe, adult-onset inherited systemic…
ATTR Amyloidosis Treatments: Stabilizers and Silencers
Dr. Brett Sperry, cardiologist and director of the Cardiac Amyloidosis…
Patient Insights: Mentally Fighting to Survive
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
AL Amyloidosis: The Past, Present, and Future
Dr. Morie Gertz, professor of medicine at the Mayo Clinic…
Amyloidosis and the Gut
Dr. Melissa Hershman, assistant professor from the OHSU Division of…
Hereditary Amyloidosis: The V122I Variant
Despite the evidence that a meaningful 3-4% of the US…
Central Nervous System and Ocular Involvement in…
Dr. Chafic Karam, professor of neurology from the University of…
Disease Overview
Overview of Amyloidosis for Patients
In this video “Amyloidosis Awareness” from the Amyloidosis Support Groups,…
AL Amyloidosis: The Past, Present, and Future
Dr. Morie Gertz, professor of medicine at the Mayo Clinic…
Hereditary Amyloidosis: The V122I Variant
Despite the evidence that a meaningful 3-4% of the US…
The Systemic Amyloidoses vs. Parkinson’s vs. Alzheimer’s
Current medical education on amyloid diseases is 25 years old…
AL Amyloidosis: Symptoms, Diagnostics and Challenges
Dr. Gurbakhash Kaur, co-director of the amyloidosis program at UT…
Diagnosing Amyloidosis: From Cardiology to Neurology –…
Dr. J. Mark Sloan, Associate Professor of Medicine, Boston University…
AL and ATTR Amyloidosis: Recognition and Diagnosis…
Dr. Heather Landau, Associate Attending Physician at Memorial Sloan Kettering,…
Amyloidosis – A Brief Clinical Overview
Dr. Sarah S. Lee, Assistant Professor, Division of Hematology, at…
Symptoms
Amyloidosis and the Gut
Dr. Melissa Hershman, assistant professor from the OHSU Division of…
Hereditary Amyloidosis: The V122I Variant
Despite the evidence that a meaningful 3-4% of the US…
Central Nervous System and Ocular Involvement in…
Dr. Chafic Karam, professor of neurology from the University of…
Timing and co-occurrence of red-flag symptoms prior…
Dr. Anita D’Souza, associate professor of hematology and medical oncology…
ATTR-CM (cardiomyopathy) vs ATTR-PN (peripheral neuropathy)
Over the course of the past two months, we spent…
The Systemic Amyloidoses vs. Parkinson’s vs. Alzheimer’s
Current medical education on amyloid diseases is 25 years old…
AL Amyloidosis: Symptoms, Diagnostics and Challenges
Dr. Gurbakhash Kaur, co-director of the amyloidosis program at UT…
Diagnosing Amyloidosis: From Cardiology to Neurology –…
Dr. J. Mark Sloan, Associate Professor of Medicine, Boston University…
Diagnosis
Amyloidosis and the Gut
Dr. Melissa Hershman, assistant professor from the OHSU Division of…
Hereditary Amyloidosis: The V122I Variant
Despite the evidence that a meaningful 3-4% of the US…
Central Nervous System and Ocular Involvement in…
Dr. Chafic Karam, professor of neurology from the University of…
Timing and co-occurrence of red-flag symptoms prior…
Dr. Anita D’Souza, associate professor of hematology and medical oncology…
Systemic Amyloidosis: You’ve Got to Think of…
Dr. Mat Maurer, cardiologist at Columbia University Irving Medical Center,…
ATTR-CM (cardiomyopathy) vs ATTR-PN (peripheral neuropathy)
Over the course of the past two months, we spent…
Patient Insights: My survival depends on my…
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
AL Amyloidosis: Symptoms, Diagnostics and Challenges
Dr. Gurbakhash Kaur, co-director of the amyloidosis program at UT…
Treatment
The Use of RNA Interference Science in…
Hereditary transthyretin amyloidosis (hATTR) is a severe, adult-onset inherited systemic…
ATTR Amyloidosis Treatments: Stabilizers and Silencers
Dr. Brett Sperry, cardiologist and director of the Cardiac Amyloidosis…
AL Amyloidosis: The Past, Present, and Future
Dr. Morie Gertz, professor of medicine at the Mayo Clinic…
Amyloidosis and the Gut
Dr. Melissa Hershman, assistant professor from the OHSU Division of…
Central Nervous System and Ocular Involvement in…
Dr. Chafic Karam, professor of neurology from the University of…
Patient Insights: My survival depends on my…
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
AL Amyloidosis: Symptoms, Diagnostics and Challenges
Dr. Gurbakhash Kaur, co-director of the amyloidosis program at UT…
Diagnosing Amyloidosis: From Cardiology to Neurology –…
Dr. J. Mark Sloan, Associate Professor of Medicine, Boston University…
Caregivers
Patient Insights: Impact on a Family
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
Role of Interdisciplinary Care Teams for Amyloidosis…
Dr. Melissa Lyle from the Mayo Clinic offers insights into…
Ensuring Adequate Racial and Ethnic Representation in…
Dr. Frederick Ruberg, cardiologist at the Boston University Amyloidosis Center,…
Racial and Ethnic Disparities in Cardiac Amyloidosis
Dr. Michelle Kittleson from Cedars-Sinai discusses the five domains defining…
Mastering the Art of Patient Care
Based on all the lessons she learned, coupled with the…
Patient Insights: Giving a devastating diagnosis
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
Multidisciplinary Care for Cardiac Amyloidosis Patients
Multi-systemic diseases such as amyloidosis are not only complex to…
Patient Insights: So many medical specialists
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
Expert Insights
ATTR Amyloidosis Treatments: Stabilizers and Silencers
Dr. Brett Sperry, cardiologist and director of the Cardiac Amyloidosis…
AL Amyloidosis: The Past, Present, and Future
Dr. Morie Gertz, professor of medicine at the Mayo Clinic…
Amyloidosis and the Gut
Dr. Melissa Hershman, assistant professor from the OHSU Division of…
Central Nervous System and Ocular Involvement in…
Dr. Chafic Karam, professor of neurology from the University of…
Timing and co-occurrence of red-flag symptoms prior…
Dr. Anita D’Souza, associate professor of hematology and medical oncology…
Systemic Amyloidosis: You’ve Got to Think of…
Dr. Mat Maurer, cardiologist at Columbia University Irving Medical Center,…
The Systemic Amyloidoses vs. Parkinson’s vs. Alzheimer’s
Current medical education on amyloid diseases is 25 years old…
AL Amyloidosis: Symptoms, Diagnostics and Challenges
Dr. Gurbakhash Kaur, co-director of the amyloidosis program at UT…
Patient Insights
Patient Insights: Mentally Fighting to Survive
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
Patient Insights: My survival depends on my…
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
Patient Insights: West African Descent – BE…
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
Patient Insights: Stay Curious
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
Patient Insights: Not Every Symptom is Amyloidosis
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
Humanizing Medical Education: Beyond Bullet Points
The content of medical education is appropriately clinically centered. The…
Patient Insights: Be a medical detective
Our patient speakers at the Amyloidosis Speakers Bureau are powerful…
Patient Insights: I have to advocate for…
With a rare disease, it is difficult to expect the…
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Join Mackenzie for an enlightening journey into the world of amyloidosis. Through candid conversations with patients, caregivers, and clinicians, she'll uncover the raw and unfiltered experiences of those living with this challenging condition. Delve into the latest medical advancements and treatments that are transforming lives, as we explore the profound impact of this disease and the hope on the horizon for improved patient care. Visit our podcast website, or find us on leading platforms, to see past episodes and subscribe for future episodes.
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