Air Charity Network
- Coordinates free air transportation for children and adults with medical or compelling humanitarian needs.
AL Amyloidosis Clinical Practice Guidelines 2026 (ASH)
- American Society of Hematology (ASH) 2026 Guidelines on Diagnosis of Light Chain Amyloidosis. The purpose of these guidelines is to provide evidence-based recommendations to facilitate early and accurate diagnosis of AL amyloidosis.
AL Amyloidosis Educational Toolkit
- In collaboration with expert panelists, researchers, and advocacy organizations, the American Heart Association (AHA) is advancing a nationwide initiative to identify and address critical gaps across the AL Amyloidosis care continuum—ensuring earlier diagnosis, timely referrals to specialized care, and comprehensive patient support throughout the journey.
AL Amyloidosis Fact Sheet
– Alexion AstraZeneca Rare Disease. About AL amyloidosis, symptoms, diagnosis, staging, and CAEL-101 clinical trial.
The Amyloidosis Channel
- The Amyloidosis Channel from the Video Journal of Hematology and Hematological Oncology. Learn about the latest clinical trial updates, novel therapeutics and regimens, diagnostic advances and optimal management across all amyloidosis subtypes, including amyloid light chain (AL), amyloid A (AA), and transthyretin (ATTR) amyloidosis.
Amyloidosis Insights
- Podcast hosted by the International Society of Amyloidosis (ISA). Requires membership.
Amyloidosis Lecture Series
– A comprehensive lecture series of short videos by amyloidosis experts covering ATTR and AL, with topics spanning disease overview, diagnosis, symptoms, racial and ethnic disparities, orthopedic manifestations, the biology between systemic amyloidoses vs Alzheimer’s vs Parkinson’s, and what the future looks like for patients.
Angel Flight East
- Provide free air transportation to qualified patients and their families by arranging flights to distant medical facilities, delivering supplies to disaster areas, and reuniting families during desperate times.
The Assistance Fund
- When you can’t afford the medication you need, they may be able to help. NOTE: they are not always "open" to providing financial support, and patients must meet eligibility criteria.
ATTR Cardiomyopathy (ATTR-CM) / Forging Bridges
– BridgeBio. For patients. A personalized support program for people with ATTR-CM,
HCPs, and office staff. The program provides a dedicated support team, help navigating insurance, and financial assistance.
ATTR Revealed
- Alnylam Pharmaceuticals. Designed to help patients uncover the deeper intricacies of ATTR amyloidosis to help them better understand the disease, how it can affect their lives, and to encourage them to work with their healthcare team to diagnose and manage their condition. Contains downloadable resources, educational disease information, and a page dedicated to caregivers.
ATTR See the Pattrns
– AstraZeneca / Ionis. For patients. About hATTR, symptoms, diagnosing, and management approaches.
ATTRv Fast Facts
- Alliance for Patient Access. About hereditary amyloidosis with polyneuropathy.
International Society of Amyloidosis
- The International Society of Amyloidosis (ISA) is a non-profit organization of Scientists and Physicians engaged in research, teaching, or practice in connection with amyloid and amyloidosis. Provides directory of different Amyloidosis centers worldwide. Requires membership.
LifeLine Pilots
- Coordinates free air transportation,
through volunteer pilots, for passengers with medical or humanitarian needs far from home.
Matching Donors
– Provides information on organ donor, organ transplant, and organ donor services.
Medthority
– Site intended for medical professionals. Offers disease awareness content and supporting materials, including relevant drugs.
Mercy Medical Angels
- Medical transportation for those in need, including on the ground and in the air.
mSMART
– Their mission is to present the state of the art approach to management of plasma cells disorders including Myeloma, Amyloidosis, and Waldenstrom’s Macroglobulinemia. Views expressed here are opinions of a group of experts from the Mayo Clinic, based on best available evidence.
Patient Assistance Program Center
- Patient assistance programs are run by pharmaceutical companies to provide free medications to people who cannot afford to buy their medicine. RxAssist offers a comprehensive database of these patient assistance programs, as well as practical tools, news, and articles so that health care professionals and patients can find the information they need.
Professional Prescription Advice
- Navigating the world of healthcare and prescriptions can be daunting. At Professional Prescription Advice, they're committed to simplifying this journey for you. With a focus on transparency and patient-first values, they help patients access the healthcare resources and support they need.
Triage Cancer / Triage Health
– Provides free education on the legal and practical issues related to navigating a chronic or serious medical condition, including Medicare, insurance, and disability.
