Making a difference in the fight against Amyloidosis
Whew! It’s been a busy first year.
I founded Mackenzie’s Mission on August 23rd, just four months ago. To recap, the mission of our charity is to make a difference in the fight against Amyloidosis. We seek to do this in two ways.
- Raise awareness about Amyloidosis, leading to earlier diagnosis and better outcomes.
- Support medical research on Amyloidosis, seeking the cause of the disease and more effective treatments to improve and extend lives.
So, how did we do in 2017?
Raising Awareness
- Profiled my journey profiled in multiple media sources:
- Amyloidosis Foundation and
- Mayo Clinic’s “In The Loop” newsletter.
- Established my platform to share my story through:
- periodic emails,
- Facebook posts on news and education, and updates on my journey, and
- videos on our YouTube channel.
The feedback I have received from my outreach has been both touching and heartwarming. While being an inspiration to others is wonderful, I am most moved by the conversations I have had with others affected by this disease. We share a common bond with uncommon experiences. Knowing we are not alone in this fight gives us all strength.
Supporting Medical Research on Amyloidosis
- Became a registered 501(c)(3) public charity.
- Raised over $19,750, thanks to generous donors like YOU!
- Deposited 100% of these donations to the Mayo Clinic’s Amyloidosis Research Fund, thanks to a generous patron who is covering all of our operational expenses.
What are our goals for 2018?
Raising Awareness
- Continue to get my journey profiled in the media.
- Expand our outreach platform with our new blog and website; target launch in March.
- Pursue speaking opportunities, both large and small, spreading the word on the importance of early diagnosis.
Supporting Medical Research on Amyloidosis
- On August 6, 2018 we will sponsor our Play FORE The Cure charity golf tournament at the prestigious Robert Trent Jones Golf Club. We have posted the event on our Facebook page and if you follow us you’ll get the details as they become available. Please come join us!
- Target $50,000 in donations for the year. We hope we can count on your continued support!
- Pass on 100% of our donations to the Mayo Clinic’s Amyloidosis Research Fund.
I am encouraged by the impact Mackenzie’s Mission is already making. There is much work to be done, but with your help I know we can win this fight!
With warm regards,
Mackenzie