Why Mackenzie’s Mission
As a result of her experience and the desire to give back, Mackenzie’s Mission was created as a registered 501(c)(3) public charity to make a difference in the fight against Amyloidosis.
We Focus Our Fight In Two Ways
- Raise awareness about Amyloidosis and the importance of early detection, which often leads to better outcomes. Diagnosing this disease before organ involvement becomes life-threatening can greatly improve the chances of successful treatment.
- Support medical research on Amyloidosis, seeking the cause of the disease, better early detection methods, and more effective treatments to improve and extend lives. It is a fact that desperately needed advancements in medical treatments require money, and we know rare diseases such as amyloidosis rely heavily on financial support from individuals and foundations. As a result, we direct funds to amyloidosis research at multiple leading institutions that we believe are integral in the medical community to finding answers and solutions.
We Implement Our Fight In Many Ways
- Raising awareness is a multi-faceted effort. The cornerstone is the Amyloidosis Speakers Bureau, an initiative sponsored by Mackenzie’s Mission and focused on educating the medical community. We focus on the next generation of doctors during their first/second year of medical school and residency programs, educating about this disease through presentations from amyloidosis patients. In addition, we maintain a digital voice through our website, blog, and social media; sharing Mackenzie’s experiences through the media and other organizations; and creating videos by Mackenzie and others affected by Amyloidosis to share their experiences and educate the community at large.
- Supporting medical research is done by providing grants to multiple leading research institutions, such as the Mayo Clinic’s Amyloidosis Research Fund, Tufts Medical Center Amyloid and Myeloma Research Fund, Boston University’s Amyloid Research Fund, and the Kelly Lab at Scripps Research.
- Fundraising is focused on a few key events throughout the year, such as our Play FORE The Cure charity golf tournament offering players the ultimate golfing experience, and Giving Tuesday which harnesses the generosity of people around the world embracing shared values and acting with purpose to bring about real change.
How You Can Join The Fight
- Help spread the word by sharing, liking, following, and commenting on our Facebook posts and fundraising events.
- Sign up for our mailing list to receive blog posts and share those you find interesting with your friends and family.
- If you’re a patient and interested in speaking on behalf of the Amyloidosis Speakers Bureau, please email us at asb.mm713@gmail.com.
- Hold a fun fundraiser or create a Facebook fundraiser, which can be a great way to celebrate a major milestone in your amyloidosis journey or a loved one.
- Consider becoming a marrow/stem cell donor. Here is a link to Be The Match, a global leader in bone marrow transplantation.
- Donate to an organization active in supporting amyloidosis patients, caregivers, or research.
