Caregivers play an important role during the treatment of amyloidosis. In fact, so important that certain treatment will not proceed without confirmation caregiver support is in place. Educated by the medical team, caregivers are involved before, during, and after a transplant and help with basic day-to-day medical and practical issues, as well as provide emotional support. During the transplant the care needs are most intensive, requiring availability 24/7.
Hear first-hand from Mackenzie and Dr. Betsy Mencher who discuss their thoughts about the role of a caregiver. Mackenzie speaks from the perspective of a patient, and Dr. Mencher shares her experience as the caregiver for her husband.