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advocacy

Helping Patients Find Their Voice

April 27, 2023

Developing one’s “patient voice” can seem unduly intimidating. Advocating one’s position may come natural to some, but terrifying for others, especially when the physician is viewed as the expert. Additionally, many patients may find it difficult to translate their feelings without having a medical vocabulary. Here are some ideas for healthcare professionals to help their patients find their voice.

Filed Under: Featured News Tagged With: advocacy, amyloidosis, patient advocacy, patient support

ASB: Our First Six Months

August 2, 2019

It’s been a quick six months since we launched the Amyloidosis Speakers Bureau, and we wanted to provide an update about our progress and all we have accomplished so far.

Filed Under: Featured News, Mission News, Speakers Bureau News Tagged With: advocacy, amyloidosis, amyloidosis news, amyloidosis speakers bureau, patientsteachingstudents, speakers bureau news

Seven Ways to Advocate for Your Health

January 25, 2019

If you have a rare disease it’s likely you’ll encounter medical professionals who have never heard of your condition. Therefore, it’s a good idea to always be an active member of your health care team. Guest blogger Lori Grover shares seven important ways you can self-advocate.

Filed Under: Featured News Tagged With: advocacy, amyloid assassin, amyloidosis, amyloidosis diagnosis, amyloidosis treatment, self-advocacy

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  • Helping Patients Find Their Voice

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