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advocacy

ASB: Our First Six Months

August 2, 2019

It’s been a quick six months since we launched the Amyloidosis Speakers Bureau, and we wanted to provide an update about our progress and all we have accomplished so far.

Filed Under: Featured News, Mission News, Speakers Bureau News Tagged With: advocacy, amyloidosis, amyloidosis news, amyloidosis speakers bureau, patientsteachingstudents, speakers bureau news

Seven Ways to Advocate for Your Health

January 25, 2019

If you have a rare disease it’s likely you’ll encounter medical professionals who have never heard of your condition. Therefore, it’s a good idea to always be an active member of your health care team. Guest blogger Lori Grover shares seven important ways you can self-advocate.

Filed Under: Featured News Tagged With: advocacy, amyloid assassin, amyloidosis, amyloidosis diagnosis, amyloidosis treatment, self-advocacy

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