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FACES of Amyloidosis 2020

In celebration of Amyloidosis Awareness Month, we share our FACES of Amyloidosis 2020.

Each person in this video is affected by amyloidosis. Each is on their own journey and wants the world to know that this disease isn’t so rare, and as time passes there is more and more hope.

Amyloidosis is a rare and incurable disease, affecting people in different ways. As a result, this often slows the diagnosis time, during which the disease continues to advance. Accurate diagnosis as to the type of amyloidosis is critical, as it directly determines the path of treatment. Timely diagnosis can also impact the trajectory of survival.

Amyloidosis knows no boundaries. Powerful words from two amyloidosis survivors …

Amyloidosis does not discriminate. It will take the young, the old, male, female and all races and socioeconomic levels.  — Jill J.

Amyloidosis is a master of disguises.  — Robin H.

A huge thank you to those that participated, for they are the true warriors.

The focus to find answers, improved treatments, and a cure is stronger than ever, and the initiatives to raise awareness are better than ever.

We will never give up.

A special thank you to Andra Day. Her song “Rise Up” and amazing voice brought these FACES to life.

 

 

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