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caregiver

Support Groups: Can They Play A Role In Your Treatment?

September 30, 2019

Have you recently been diagnosed with Amyloidosis? Wondering if joining a support group, whether online or in person, would be right for you? This may help you decide.

Filed Under: Featured News Tagged With: amyloid assassin, amyloidosis, amyloidosis treatment, caregiver

VOICES of Amyloidosis

January 9, 2019

VOICES of Amyloidosis is a five-part campaign intended to give voice to those impacted by the disease. Each person in this video, which includes patients, caregivers, and expert doctors, have a story to tell in their own unedited words. You will feel their emotions and share their hope for the future.

Filed Under: Featured News, Mission News, What Is Amyloidosis Tagged With: amyloidosis, amyloidosis news, amyloidosis treatment, caregiver

Building a Caregiver Team

August 27, 2018

There are times when those afflicted with amyloidosis need assistance — a caregiver. In some instances, such as a stem cell transplant (SCT), the treatment is so extensive that securing a caregiver is required before treatment commences. It is for these more intensive situations that we thought we’d share some thoughts about how to build a caregiver team.

Filed Under: Featured News Tagged With: amyloidosis, amyloidosis recovery, amyloidosis treatment, asct, caregiver, sct, stem cell transplant

Transplant: Inpatient vs Outpatient

May 13, 2018

A stem cell transplant is a complex treatment that typically takes four to six weeks and is performed inpatient, outpatient, or some combination, depending on the hospital. There are meaningful differences between inpatient and outpatient that are worth knowing about.

Filed Under: Featured News, What Is Amyloidosis Tagged With: amyloidosis, amyloidosis treatment, asct, bone marrow transplant, Boston medical center, caregiver, Gertz, mayo clinic, Sanchorawala, sct, stem cell transplant

The role of a caregiver

April 2, 2018

Caregivers play an important role during the treatment of amyloidosis. Hear experiences from two perspectives – a caregiver and a patient.

Filed Under: Featured News Tagged With: amyloidosis, amyloidosis recovery, amyloidosis treatment, asct, caregiver, sct, stem cell transplant

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