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"What lies behind you and what lies in front of you, pales in comparison to what lies inside of you."
Ralph Waldo Emerson

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2021: The Virtual World Continued

Whew! A year that we thought would return to normal was beset with two new COVID-19 variant relapses. In response, we extended our ‘virtual normal’ which began in 2020. We are proud to say we advanced our mission in many impactful ways, thanks to YOU, our wonderful supporters! Please enjoy reading our 2021 Report Card on how your support helped fuel our work to educate medical students and resident physicians, and support game-changing medical research.

ASB: 2021 Year-End Review

The Amyloidosis Speakers Bureau (ASB) had a wonderful year in 2021, settling into a new normal of virtual presentations. We gave 61 presentations to 2,400 U.S. medical students and internal medicine residency programs. We invite you to read more about our exciting and trajectory-changing educational initiative.

THE POWER OF THE PATIENT/PHYSICIAN COLLABORATION

This excellent video showcases how physicians can collaborate with their patients to work towards a diagnosis. When dealing with an uncommon disease, it’s critical for physicians to be curious, ask questions, and listen.

Amyloidosis: A Brief Overview

Amyloidosis is a “group of diseases” that have the common feature where abnormal proteins (or in some cases normal proteins) behave abnormally, and the breakdown product of these proteins fold upon themselves, creating amyloid” fibrils.” Amyloid fibrils may affect only a single organ or, often, are spread throughout the body. They can affect different organs in different people, and there are different types of amyloid proteins, making this complex disease often elusive to diagnose. Severe amyloidosis can result in life-threatening damage to these organs or even failure. This overview offers a brief summary of this complex disease.