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"What lies behind you and what lies in front of you, pales in comparison to what lies inside of you."
Ralph Waldo Emerson

Blog

ASB: 2021 Mid-Year Review

It’s been a wonderful year, closing our our second full school year since our launch. Since we began two years ago, we have made over 110 presentations to over 5,600 first/second year medical students. Feedback confirms that our patient speakers do a great job educating future doctors on the patient perspective of navigating a rare disease! We invited you to read more about what we’ve accomplished so far in 2021.

Tips & Recipes for Healthy Eating with Amyloidosis

Are you wondering what diet to follow after a diagnosis of AL Amyloidosis? With so many unknowns and what-ifs, it is a scary and overwhelming time. Guest writer Lori Grover, herself an Amyloidosis survivor, provides helpful insights into healthy eating. So much is out of your hands as you wait for test results and treatment […]

CRISPR/Cas9 – Editing the Code of Life

The scientific world is abuzz … a Nobel Prize-winning technology called CRISPR/Cas9 can now edit our DNA. This programmable gene-editing technology, which is efficient, precise, and scalable, has inspired a gold rush of countless applications in medicine, agriculture and basic science.  In this blog we invite you to read more about this ground-breaking advance and how, with one course of treatment, it could potentially cure hereditary transthyretin (hATTR / ATTRv) amyloidosis.

AI, Protein Folding & Amyloidosis

AI is rapidly advancing the knowledge of protein misfolding, unlocking answers for amyloidosis which should lead to earlier diagnosis, improved treatment, and better patient survival.