Blog

ASB: Our First Six Months

August 2, 2019

It’s been a quick six months since we launched the Amyloidosis Speakers Bureau, and we wanted to provide an update about our progress and all we have accomplished so far.

Treatment Survival Guide for AL Amyloidosis

July 31, 2019

Starting treatment for AL amyloidosis can be a scary and difficult. The uncertainty of it all can be overwhelming. If you’re worried about what you’re about to face, our treatment survival guide offers some tips and tricks from patients who have been there.

AL Amyloidosis: Age at Diagnosis Survey

March 21, 2019

Is the age at diagnosis of AL Amyloidosis changing? We set out to find the answer.

DOCTORS of Amyloidosis

March 10, 2019

Twelve of the most notable experts in the fight against this disease share, in their own unedited words, their views on the state of the disease. This unparalleled collection of messages from leading experts is a priceless read to understand the disease both today, and tomorrow.

Seven Ways to Advocate for Your Health

January 25, 2019

If you have a rare disease it’s likely you’ll encounter medical professionals who have never heard of your condition. Therefore, it’s a good idea to always be an active member of your health care team. Guest blogger Lori Grover shares seven important ways you can self-advocate.