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Speakers Bureau News

ASB: 2021 Year-End Review

December 14, 2021

The Amyloidosis Speakers Bureau (ASB) had a wonderful year in 2021, settling into a new normal of virtual presentations. We gave 61 presentations to 2,400 U.S. medical students and internal medicine residency programs. We invite you to read more about our exciting and trajectory-changing educational initiative.

Filed Under: Featured News, Mission News, Speakers Bureau News Tagged With: AL amyloidosis, amyloidosis, amyloidosis diagnosis, amyloidosis speakers bureau, ATTR amyloidosis, ATTRwt, diagnosing amyloidosis, light chain amyloidosis, patientsteachingstudents, raising awareness, wild-type amyloidosis

THE POWER OF THE PATIENT/PHYSICIAN COLLABORATION

December 7, 2021

This excellent video showcases how physicians can collaborate with their patients to work towards a diagnosis. When dealing with an uncommon disease, it’s critical for physicians to be curious, ask questions, and listen.

Filed Under: Featured News, Speakers Bureau News, What Is Amyloidosis Tagged With: AL amyloidosis, amyloidosis, amyloidosis diagnosis, ATTR amyloidosis, ATTRwt, cardiac amyloidosis, diagnosing amyloidosis, light chain amyloidosis, patientsteachingstudents, raising awareness, wild-type amyloidosis

A Clinical & Patient Perspective of Wild-Type Amyloidosis

July 29, 2021

In this special video, hear world-renowned expert Dr. Mathew S. Maurer and his patient John Basdavanos presenting to a group of medical students. Dr. Maurer provides a brief overview of Wild-Type Amyloidosis (ATTRwt), while John provides the patient perspective. Together, these insights offer a compelling story about battling a life threatening disease.

Filed Under: Featured News, Speakers Bureau News, What Is Amyloidosis Tagged With: amyloidosis, amyloidosis diagnosis, amyloidosis speakers bureau, ATTR amyloidosis, ATTRwt, diagnosing amyloidosis, patientsteachingstudents, wild-type amyloidosis

ASB: 2021 Mid-Year Review

June 6, 2021

It’s been a wonderful year, closing our our second full school year since our launch. Since we began two years ago, we have made over 110 presentations to over 5,600 first/second year medical students. Feedback confirms that our patient speakers do a great job educating future doctors on the patient perspective of navigating a rare disease! We invited you to read more about what we’ve accomplished so far in 2021.

Filed Under: Featured News, Mission News, Speakers Bureau News Tagged With: #amyloidosisspeakersbureau, amyloidosis, patientsteachingstudents

Charolotte Raymond

March 10, 2021

We’ve lost an amyloidosis warrior, a partner in the Amyloidosis Speakers Bureau, and a friend. Charolotte will always be in our hearts and prayers. We will miss her dearly.

Filed Under: Featured News, Speakers Bureau News Tagged With: #amyloidosiswarrior, AL amyloidosis, amyloidosis, amyloidosis speakers bureau

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  • 2021: The Virtual World Continued
  • ASB: 2021 Year-End Review

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